Out of the Labyrinth Part 2: Lessons I've Learned from Chronic Illness

"For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope."  Jeremiah 29:11

On August 18, 2011, I started this blog, Broken Places, sensing that God wanted me to expose my physical, emotional, and spiritual brokenness to a hurting and broken world.  At that time, I was unaware of what was causing my physical symptoms and that I was merely on the edge of exploring the depths of true brokenness and suffering.  Two months later, my world was rocked when I listened to a radio interview about Lyme disease hosted by author and speaker, Susie Larson.  Awareness about Lyme disease changed everything for me, and the journey of exploring broken places and the labyrinth of navigating chronic Lyme and chronic illness began.  In my journey, I plodded through a deep and long valley requiring me to blindly follow my Shepherd through this labyrinth.

Now, here I am almost six years later, working on my 37th article and looking back at my experience.  As I view my journey from the mountaintop of fresh mercies, it feels surreal.  I am sitting here at my keyboard with a feeling of expectation and a sense of unexplained joy, like a warrior who has been in the pit of the battle.  A warrior burned in the fire that came out stronger and more confident.  A warrior who is walking on the holy ground of God's supernatural healing grace.   In my last article, I reviewed some of the steps I have taken to heal through the recovery and aftermath of being infected with Lyme disease several times over a period of approximately eight years.  Now, I would like to reflect on the spiritual journey I have embraced through God's supernatural guidance and loving grace that has been sufficient for the battle.

BREAKING FREE FROM THE STATUS QUO

When you struggle with a chronic health condition for an extended period of time, your concept of "normal" eventually shifts to adapt to your circumstances and limitations.  The "new normal" can become an acceptable part of who you are and can threaten to define you.  This is certainly what I experienced.  I felt like I was in a rut in which it was easier to be comfortable with my limitations than fight to gain ground back physically.  If I wanted more, wouldn't I be questioning God's sovereignty?  Maybe this was all there was and all He wanted for me.  Over a period of several years, I had numerous stressful circumstances weighing me down and other factors that were in place that seemed to be drowning out my fight and will to heal.  I think I was slowly giving up and giving in. The ice bucket of reality hit me when I was forced to move significantly backwards by two reinfections with Lyme disease in a six-month time frame.  With the second infection, a major relapse of symptoms woke up my desire for improved health.  I then came to realize that my thought process was distorted, and I was ready to take back my life.

GRIEF AND JOY

"Therefor, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross, despising the shame, and is seated at the right hand of the throne of God."   Hebrews 12:1-2 

Just as there is a fine line between accepting a situation as a part of God's sovereignty and being motivated to seek new ground in the battle; there is also a fine line between grief and joy in suffering. Grieving a physical loss is a lengthy and complicated process, especially when it involves multiple layers and new losses through physical gains and debilitating setbacks.  Last winter, my grief became almost unbearable when someone from my church pointed out how much I have been robbed in my health struggles.  It hit me like a sack of bricks in the gut, and I felt groans of pain that words could never describe.  My deep piercing grief transformed into the foundation brokenness God needed to plant His seeds of transforming grace to manifest beautifully painful joy in my spirit.  Perhaps, that is a measure of why He allowed His beloved Son to endure unfathomable suffering.  His most precious Treasure was spit on, mocked, humiliated, beaten, tortured, and ultimately separated from God's love while being nailed to a tree--the most inhumane form of execution anyone has ever experienced.  Who can understand this sacrifice of grief, humiliation, and joy bundled up in a redeeming package?

I have witnessed various levels of grief from those who have battled chronic Lyme disease and have been astounded by the courage and strength many have demonstrated as they experience their individual battles.  On several occasions, these Lyme warriors shared their own experiences of making sacrifices to be thankful.  Some have been as bold to say they wouldn't trade their pain for anything because it gave them the opportunity to see God's transforming grace in their life.  They joyfully endure because they are sharing in Christ's suffering on the cross and recognize the harvest He is planting through this experience.  This a concept the world does not understand, yet God has the power to resurrect suffering and grief into a beautiful new creation.

AM I ALL IN?

When our lives are marred by circumstances beyond our control, we can throw our hands up in the air in either defeat or submission to the unseen and faithful Creator of the universe Who is ultimately in control of all things.  With the battle lines drawn, we are unable to change our circumstances, but we can change how we respond to them.   To be "all in" is a very personal spiritual experience in which we take the risk and "trust the Lord with all our heart" as we "lean not on our own understanding" (Proverbs 3:5). I have found that there is no cookie cutter step in this process, and that is the remarkable unexplained mystery of experiencing a personal relationship with the Lord.  When we take that leap of faith and jump blindly into the unknown waters of redemption, we experience the terrifyingly beautiful expanse of grace bestowed upon us by a loving Redeemer.

When I came to the crossroads of facing my "all in" faith dilemma, I tentatively tested out the murky waters of an unknown territory.  Could I endure with persistent faith in the steep uphill journey my Creator has called me even if I could not see an end in sight?  The kingdom path is treacherous, but for me it was the only path I could take.  When my health battle engulfed me years ago, I picked up the Bible to search for hope and answers.  Since then, I have read the entire Bible more than six times, read numerous Christian books and devotionals, worked through at least a dozen individual inductive Bible studies, and filled multiple notebooks and journals with prayers, personal thoughts/reflections, and lists. These aren't bragging rights, and it has been an extremely humbling experience for me to wrestle through my faith in this painfully real way.  These studies and reflections have been my anchor and connection to the Unseen--the Faithful One, the only one Who could truly understand the depths of my pain and need for Him.

ANSWERED PRAYERS

"Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus."  Philippians 4:6-7

Hebrews 1:11 says that "faith is the assurance of things hoped for, the conviction of things not seen."  How do we have faith when our prayers go unanswered--our lives marked by weeks, months, or years of enduring and battling deep personal suffering?  I can testify to the heartache of plodding through unbearable times of seemingly unanswered prayers, stress and worry weighing me down like a load of bricks.   I tried different methods to offset these stressful moments and found the combination of a gratitude and prayer journal to be the best antidote to facing my fears of the unknown.  In taking writer and blogger, Ann Voskamp's, "joy dare", I have embraced her Eucharist ideology that "thanksgiving always proceeds the miracle" by making a conscious effort to give thanks in all circumstances.   I make bedtime my personal Eucharist experience when I take a moment to list the joyful gifts God has given as well as embrace the painful aspects of my spiritual walk, which Ann likes to call the "ugly beautiful."  Next to my gratitude list, I keep a list of prayers requests for specific things that I am wrestling through.  Any time something new comes up that causes me worry and stress, I write it down and give it to the Lord.  The last couple of years, my prayer list was compounded with numerous stressful events.  Sometimes it seemed like our family was being crushed by impossibly surreal circumstances that loaded my spirit with the weight of worry.  Tempted to give in to my worry, I endured these trials and kept bringing them back to the Lord over and over again.  Then, last spring, the answers to numerous prayers started to come in so swiftly, I felt breathless in awe at what the Lord was doing.  Looking back at those desperate words crammed in the pages of my journal with tiny check marks beside them, I find a tangible testimony of God's powerful sovereignty that brings all things together under His reign by His perfect timing.  The reality is that "in this world we will have trouble" but I will continue to "take heart" that my Redeemer "has overcome the world" (John 16:33).

EMOTIONAL AND SPIRITUAL HEALING

              The emotional and spiritual journey of healing through chronic illness has been an agonizing yet rewarding process for me as I have blindly turned to God for His supernatural strength and hope to carry me through. As we carry our layers of grief, loaded by the traumatic events of our past and the burdens of guilt, we need a Redeemer to release these burdens from our spirit.  Just as our family friend and mentor, Ron, advised me to release all things to Christ and "nail it to the cross" because "that is what He died for", I have been grateful to have these burdens divinely lifted from my conscience so that I can truly experience the joy of walking free in the Lord.  I wasn't set free from my burdens of grief until I was torn down by hardship and disease to be lifted up by the hands that were once nailed to a tree so that I could trust in God's sovereignty free of guilt and insecurity. I now make it a regular habit to watch for the emerging tide of grief, guilt, and shame that threaten to encroach me so that I can prayerfully release them to the Lord through a process of sanctification and renewing the mind.  I also reflect on the attributes of the fruit of the Spirit, asking God to imprint my life with His "love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self-control" (Galatians 5:22-23).  My journey of emotional freedom and embracing the gift of God's fruit has uplifted me to greater depths of joy and praise.  When I keep my eyes and my heart upward, I feel light, free, and at peace! 

OUT OF THE LABYRINTH

"Be strong, and let your heart take courage, all you who wait for the Lord!"  Psalm 31:24

 I look back at my labyrinth journey with few regrets because I know that God redeems all things.  His gentle scarred hands have the power to take the ugly and painful aspects of our lives and use them to sanctify us so that we are able to give back to this hurting world.  I pray that my story will testify others who are in the labyrinth to not give up as they look to the Redeemer of all things and find strength to keep going despite what barriers seem to hold them back. Recently, I have experienced a renewed stirring in my soul.  My heart is consumed with a burning desire to let go of the disease that has defined me for too long and to thrive in whatever new journey the Lord leads me to.  There is much to do and to live for, and I thank the Lord for my joyful resolve to move forward!

"The Lord is my strength and my shield; in him my heart trusts, and I am helped; my heart exults, with my song I give thanks to him."  Psalm 28:8

For more information about my Lyme labyrinth healing journey you can read the first part of this article:  http://dzehm.blogspot.com/2017/01/out-of-labyrinth-part-1-healing-through.html

Here is the original reflection of my Lyme labyrinth experience:  http://dzehm.blogspot.com/2016/09/the-lyme-labyrinth-crushed-spirit.html

RESOURCES

I am not a doctor or an expert on Lyme disease. The information in this article is based solely on personal experience and discussions with other individuals who have struggled with Chronic Lyme disease and is not intended for purposes diagnosis or treatment.   For more information about Lyme disease and my journey, you can read the following articles I have written.

http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html

http://dzehm.blogspot.com/2012/11/enduring-winter-my-battle-with-lyme.html
 
http://dzehm.blogspot.com/2015/07/the-good-fight-my-lyme-relapse.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering-2.html

http://dzehm.blogspot.com/2014/10/the-voices-of-lyme-voice-of-hope-nancys.html

http://dzehm.blogspot.com/2014/12/the-voices-of-lyme-voice-of-youth.html

http://dzehm.blogspot.com/2015/02/the-voices-of-lyme-voice-of-battle.html

Out of the Labyrinth Part 1: Healing through Lyme and Chronic Illness

"Bless the Lord, O my Soul and all that is within me, bless his holy name!  Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, who satisfies you with good so that your youth is renewed like the eagles."  Psalm 103:1-5

In my last blog article, The Lyme Labyrinth, I explored the crushing labyrinth of my chronic illness in describing the raw pain that is experienced in battling this debilitating disease.   After years of seeking out God's sovereignty in my physical and emotional struggles with chronic illness, my life was once again completely flattened by a major relapse of Lyme in the fall of 2015.  It truly was a wake-up call, like a bucket of ice water to open my eyes to the truth of my situation.  Towards the end of my relapse, I saw a need to change my focus and perspective of my health and life.  Although I never lost faith, I saw a diminished reflection of hope and needed to recharge my drive to thrive.   With renewed resolve to move forward, I was determined to do whatever I could to fight back.

My healing journey through Lyme and chronic illness has involved a complicated process of unveiling layers of multiple root causes and using various disciplines and techniques for recovery.  As I reflect on my labyrinth experience, I would like to take a moment to look back at my chronic illness and the steps I have taken to heal through the recovery and aftermath of being infected with Lyme disease several times over a period of approximately eight years as well as touch on information that other Lyme warriors have shared about their healing journey.

LYME AND CHRONIC ILLNESS--BEYOND THE LABEL

When we experience health problems, we have this desire to name what is wrong with us, as if a name itself can bring healing and relief.  We feel validated when we have a label or diagnosis to describe our situation.  It is easier for me to tell people my diagnosis is chronic vertigo and fibromyalgia secondary to chronic Lyme disease rather than trying to explain my unusual list of symptoms.   When I finally did have an official medical diagnosis, I was relieved to have a name for my condition, but honestly these words just scratch the surface of the depth and complications of my situation.  Just the other day, I was having an online conversation with my Christian Lyme support group about this very subject.  Another warrior said that we can't blame Lyme disease on all of our symptoms.  Although many Lyme warriors respond to treatment, those of us who do not recover have common similarities in experiencing other chronic health problems that compromise our immune systems.    Chronic Lyme sufferers frequently describe battling multiple health issues such as hormone and electrolyte imbalance, leaky gut/imbalance in beneficial intestinal bacteria, pots syndrome, methylation issues/impaired detoxification pathways, histamine problems, mast cell disease, chronic inflammatory disease, and other autoimmune conditions. Lyme is also usually accompanied by other chronic infections, Lyme co-infections, and parasites that may require multiple approaches to alleviate.  I've stated in previous articles that Lyme is a conduit for other infections to take over the body and cause general imbalance of the body chemistry.   In these situations, we can be left behind with a mess of problems to address.

FINDING THE RIGHT PROTOCOL

"Many are the afflictions of the righteous, but the Lord delivers him out of them all."  Psalm 34:19

Chronic Lyme disease is a condition that many in the medical community deny its existence, and practitioners who are aware of this disease know that they are at risk for losing their medical license with practicing recommended medical interventions.  Treating Lyme is as controversial as the disease itself, and there are a myriad of options available if you know where to start.

Most "Lymies", as individuals in the Lyme community often call themselves, recommend getting tested through a company called IGeneX as the results are more accurate than the Western Blot and other CDC standard tests which often have false negative results.  "Lymies" also recommend you see a Lyme Literate Medical Doctor (LLMD) or a practitioner who specializes in Lyme disease.  LLMD's follow a specified symptom-based protocol for diagnosing Lyme disease and also specialize in identifying common co-infections and viruses that frequently coincide with Lyme. LLMD's will often use a combination of long-term antibiotic therapies and supplementation to treat the disease/co-infections and accompanied side effects and symptoms. Some Lyme warriors declare antibiotics to be the best course of treatment; however, there is much controversy over the side effects of long-term use of antibiotics. Some LLMD's may not take insurance, and insurance companies will not pay indefinitely for antibiotics which makes services and treatment protocols very expensive.   I think the use of long-term antibiotics should be a personal decision based on various individual preferences and other factors.

Another medical option for treating Lyme and chronic illness is finding a good functional medicine doctor or practitioner who is familiar with Lyme disease.  Functional medicine practitioners look at the whole person and often integrate both traditional and holistic approaches to medical care.  They tend to be more open to working with alternative practitioners and are understanding about controversial medical problems such as chronic Lyme.  There are some Functional medicine MD's that specialize in Lyme and other chronic infections.  Other individuals in the Lyme community have completely switched to herbal and alternative therapies/protocols such as the Buhner protocol, Cowden protocol, essential oils for healing, Bee Venom Therapy (BVT), infrared laser therapy, and  energy therapies.

Many of these protocols and therapies have been successful for treatment and recovery of Lyme disease but there is no approach that works the same for each person and their unique situation. When deciding on a Lyme protocol, I recommend researching options on the internet, joining an online/Facebook support group to discuss options with others who have been through it, and talking to individuals with expertise in Lyme disease. Taking these steps will make it easier to make an informed decision.  For those who haven't found the right option yet, I would encourage them not to give up, as I have seen firsthand that there is no "one size fits all" approach to treating Lyme disease and other chronic illnesses.

In the fall of 2011, I started Lyme treatment with a round of the antibiotic doxycycline, and then I tried the Buhner protocol using herbs for killing Lyme and other infections.  Both courses of treatment caused me to have adverse die off reactions and side effects that were debilitating.   At that time, I didn't have a Lyme practitioner to oversee my care, and I had a difficult finding an affordable LLMD that could get me in for an appointment.  I sensed that this was not the route for me because of expenses involved and my extreme sensitivities to chemicals, medications, and herbal remedies.  After doing some research and spending a considerable amount of time in prayer, I chose Field Control Therapy (FCT) as my preferred treatment plan as it was less invasive and seemed to be the best option for my situation.   I also have received medical evaluations from a traditional medical doctor who practices functional medicine and has been very supportive of my treatment plan.  I feel very fortunate to receive excellent care from multiple disciplines.

MOLD AND OTHER TOXINS

I have had conversations with several individuals with chronic Lyme who also have chronic health issues related to exposure to mold and other toxins.  Toxic mold exposure is very damaging to the body and nervous system and can have similar effects to the body as Lyme disease itself.  There are various types of mold, both indoors and outdoors.  It is impossible to avoid mold all together but critical to identify and alleviate the problems to the best of our ability.  It is also important to decrease our exposure to chemicals, air fresheners, and perfumes as we are healing our bodies, brains, and nervous systems.  Using natural fragrance free products and cleaners can help alleviate this problem.  I avoid household chemicals such as chemically based cleaners, bleaches, air fresheners, and fabric softeners.   I also use a lot of personal products and soap that are hypoallergenic and declared to be "free and clear."  I make it a point to read labels in order to reduce toxic exposure in the house and on my body.

CHOOSING A DETOXIFICATION PLAN  

Lyme disease carries various toxins which are released when the spirochetes die off, causing an adverse reaction of very unpleasant and sometimes frightening symptoms.  This process is called Jarisch-Hersheimer or herxing.  For this reason, a good detoxification protocol is often recommended for fighting Lyme and chronic disease.  Some individuals use natural therapies and supplementation for detoxification such as essential oils, activated charcoal, and coffee enemas.  Field Control Therapy provides a gentle non-invasive and uniquely personalized energy-based detoxification process that helps the body to stop the vicious cycle of recycling toxins through the system.  The inability to effectively eliminate toxins is a common problem with individuals who have impaired detoxification pathways.  Because many detoxification protocols can cause herxing and other side effects, I recommend using them with the supervision of a Lyme practitioner.    

I spend the first part of my morning using inexpensive natural means to enhance my detoxification process.  Upon awakening, I drink a dash of raw organic apple cider vinegar in a glass of bottled water enhanced with minerals from a Himalayan rock solution.  This replenishment beverage rejuvenates me and gives me energy to start my day and the detoxification process.  Then, I spend a brief amount of time on a rebounder and use dry brushing to activate my lymphatic system so that my body more easily detoxes.  Afterwards, I take a natural detox bath using products such as epson salts (though I don't personally use epson salts, many prefer this method of detoxification), apple cider vinegar, baking soda, or organic ginger spice.  While in the tub, I do oil pulling therapy using organic unprocessed coconut oil to pull out oral bacteria.  At breakfast time, I juice organic vegetables for further optimization of my detoxification.  Our bodies do most of our detoxing before 10 AM so it is important to do these protocols first thing in the morning before eating anything.  

COMPLIMENTARY THERAPIES 

There are many complementary therapies that may work well with Lyme protocols such as homeopathic therapies, acupuncture, massage, and chiropractor care.  I would caution individuals in using some of these therapies while actively treating Lyme as they all will release toxins and may be too much for the body to handle at once.   The ability to tolerate complementary therapies is based on the individual's body chemistry and over all reaction to the therapy, and it might be a better option  to start them after completing antibiotics and other Lyme therapies.   Since I am done with treating Lyme disease and other co-infections, I am currently in the recovery stage of rebuilding my immune system and repairing damage to my nerves.  In addition to the alternative therapies to help in this process, I take various mineral supplements to enhance my overall immune system and health.   I also routinely see a chiropractor who specializes in cranial sacral therapy for a previous head injury that has contributed to my vertigo and other neurological symptoms.  Cranial sacral therapy does release toxins and it usually takes me a few days to recover from a session so my alternative practitioner has me take a personally designed FCT protocol to help my body to process and eliminate these toxins.  

DENTAL HEALTH

Good dental health is also important for treatment and recovery from Lyme and chronic disease.  When we have an active infection in our mouth, it further compromises the immune system.  Dental amalgams comprised of mercury, metal implants, and root canals can also contribute to the problem; however, there is controversy in the medical and dental community regarding the harm of amalgams and other dental procedures.  Several years ago, my immune system was compromised by an underlying infection surrounding my metal crown, and I also experienced some unusual side effects from my dental amalgams and implant metal. When the infection around my metal crown spread into my neck, I made a dentist appointment to have the infected metal crown removed and replaced with porcelain.  It took me approximately 3 years to save up the money to address all of my dental problems.  Unfortunately, my hesitation to take care of them right away caused a delay in my physical healing. Although it took time to recover from the procedures, I did not regret my decision to safely remove all amalgams and other metal from my teeth.  For those who would like to take a serious look at these issues, I recommend finding a biological/holistic dentist or someone who at least has the proper equipment to safely remove dental amalgams as the mercury vapors can be released into the mouth which can be dangerous for both the patient and the dental staff.  To find a holistic dentist in your area, you can search this website:  http://www.holisticdental.org/

NUTRITION AND DIET

When battling Lyme, our physical system and body chemistry can become compromised, and inflammatory foods may exacerbate symptoms.  Lyme disease and antibiotic therapy often have a dramatic effect on the intestinal tract, causing an imbalance of beneficial bacteria and an overgrowth of candida.  Candida and leaky gut can wreak major havoc on the body and immune system, leading to food allergies and sensitivities, anxiety, and neurological side effects.  I have struggled with multiple food sensitivities for several years which increased in severity during my relapse in 2015.  Although I did not eat any fruit, grains, or sugar, the candida in my system was reacting with natural sugars from starchy vegetables in my diet producing acetaldehyde (a byproduct of alcohol) causing me to have severe brain fog, vertigo, and other neurological problems. My body was having difficulty processing foods high in sulfur and was converting the sulfur to ammonia and formaldehyde.   My practitioner put me on a anti-inflammatory paleo and ketogenic diet in which I severely restricted both foods high in carbs and sulfur.  My practitioner also expressed concern that my immune system seemed to be attacking my myelin which was causing nerve damage and a disruption of communication in my brain and nervous system.  He told me that consuming fats was the best way to rebuild myelin.  I significantly increased my intake of healthy fats by incorporating organic unrefined olive oil, ghee (clarified butter), and organic lard in my diet.  My practitioner put me on evening primrose oil as well as omega 3 and 6 essential fatty acids to expedite the process of rebuilding my myelin.  Although the diet changes seemed to be helping, I felt I needed to make more alterations to enhance my diet.  Last spring, I started the Gaps (Gut and Psychology Syndrome) diet in order to heighten the healing of my intestines, brain, and nervous system as well as rebuild my immune system.   I have found nutrition to be a critical element of my healing process.  Over time, I have retrained my body to appreciate food for its nourishing quality. My tastes have changed dramatically in which I could enjoy good high quality nourishing foods without craving sugars and other potentially damaging foods that inflame the body and suppress the immune system.

ELECTROMAGNETIC FREQUENCIES

I would have to say that the most bizarre and difficult aspect of coping with chronic Lyme has been my severe sensitivities to lights and electromagnetic frequencies (emf's) from fluorescent lights, electronic devices, computers, cell phones, satellites, and especially WiFi.  It makes it very challenging for me to travel and visit public places that have strong emf's such as hospitals and schools.   Some Lyme practitioners encourage their patients to take whatever measures they can to reduce emf's by shutting off/removing WiFi, unplugging microwaves and other appliances, limiting cell phone/tablet usage, and using the speaker phone feature instead of putting the phone by your ear.  We made some dramatic changes in our household to address my emf sensitivities. First, we got rid of all of our fluorescent lights and replaced them with traditional bulbs.  We did some frequency testing in my house to locate the most significant problem areas.  As result, we took the TV and other electronic devices out of our bedroom and removed all of our cordless phones.  We also purchased specific devices for our house and my cell phone to help with these sensitivities.  We have experimented with veterinary magnets that we have placed on the electrical box outside of our house, and we strategically placed the magnets in specific areas of the house and our vehicles. We tried shutting off our WiFi when we weren't using it but my sensitivity was severe enough that we made the decision to remove it all together.  When I joined a chronic Lyme online support group, I was surprised to find out how many people share in similar struggles, although the level of sensitivity varies from person to person.

EXERCISE AND REHABILITATION

In my last article, the Lyme Labyrinth, I described recovery from Lyme as "rebuilding from the ground up."  Years of battling Lyme, co-infections, and other pathogens left me with low muscle tone and a weak body.  In 2011, I was participating in a fairly aggressive physical therapy program that specialized in vestibular therapies for vertigo and balance disorders.  When I initially started treatment for Lyme disease, I had to stop the program all together.  I attempted several times to start up my exercise program but pain, weakness, tachycardia, air hunger, vertigo, and other neurological symptoms were significant barriers for me.  After my relapse in 2015, I was determined to fight back and rehabilitate my body.   I used my local online library consortium to find exercise books and videos that were low impact and were adaptable for my physical impairments.   I started off with basic stretches and breathing exercises.  At first, muscle cramps, weakness, fatigue, and vertigo slowed down my progress but I did not give up.  With a few alterations, I have been able to work up to a vestibular physical therapy program comparable to my previous exercise program.  I am currently working on building muscles and core strength as well as counteracting my chronic vertigo and correcting issues with my posture and spine.  Good posture and stomach breathing is excellent for relaxing the parasympathetic nervous system and helps regulate breathing. In addition to rebuilding my strength, I am hopeful to build up my endurance so that I will be able to eventually start walking again without needing a wheelchair and other devices for longer distances.

EMOTIONAL FREEDOM

"Why are you cast down, o my soul, and why are you in turmoil within me?  Hope in God; for I shall again praise him, my salvation and my God." Psalm 42:11
  
Our emotional health is an essential aspect of breaking free from the labyrinth of chronic disease.  I believe this area can be easily misconstrued or distorted in our healing journeys.  I have spoken with several individuals who were misdiagnosed with mental illness during the process of seeking a diagnosis for their chronic health issues.  Unfortunately, these brave warriors have been weighed down with unnecessary guilt and grief, questioning the legitimacy of their debilitating symptoms. There are major emotional components involved in this very complicated labyrinth of symptoms and stressors which can cause anxiety, depression, and hopelessness.  I think it is important to unveil the source or root cause of these emotional symptoms.

The emotional element of my personal healing process involved bio-chemical and hormonal imbalances that have taken time to resolve through diet, supplementation, and energy therapies.  Additionally, it was necessary for me to sort through layers of emotions and grief as well as coping with a chronic condition that has robbed me from certain aspects of living a "normal" life.  This has been a very personal spiritual journey for me as God has helped me to unveil these layers of grief and release them through forgiveness, meditation, prayer, and simply having the courage to let them go. Over the summer, my alternative practitioner started working with me on emotional freedom and healing through grief and past traumatic events.  The initial phase of this process was rather emotional for me, and I felt both physically and emotionally exhausted afterwards. As I navigated through process of letting go and releasing these emotions from my conscious mind, I experienced a supernatural peace in my spirit as though a heavy weight was lifted off my soul.  It has truly been a wonderfully joyful and freeing experience for me.

 I believe that our conscience holds on to certain information that can block or act as barriers for our healing.   I am NOT in any way saying that the individual is to blame for their illness or struggles.  I want to encourage those who are struggling with chronic health concerns and feel stuck in their situations to let go of the guilt and self-blame, as this type of thinking can be both physically and emotionally draining.  Unveiling these barriers is a slow process in God's timing as He knows exactly what we need and has a greater purpose for us in the process of discovery.  Forgiveness is a critical first step, as we take time to forgive ourselves, others, and God.  Then, we can truly open our hearts to the love of God and His healing power.  Trust that God will reveal in the right time what needs to be done.  Only God knows when we are ready to release our hurts and griefs.  In trusting our gentle and loving Redeemer, we can can find emotional freedom one step at at time.  Christians sometimes call this process renewing the mind or finding freedom in Christ. Others may call it emotional freedom techniques (EFT), the power of intention, or practicing mindfulness.  Whatever we choose call it; God wants us to let go of our past and be free!

MOVING FORWARD

"O Lord my God, I cried to you for help, and you have healed me... you spared me from going down to the pit."  Psalm 30:2,3b

Recovery from Lyme and Chronic Illness has been a very complicated and lengthy process for me, navigating through a labyrinth of symptoms, processes, moments of healing, and multiple setbacks.   Exploring new venues for exercise, nutrition, cranial sacral therapy, relaxation techniques, emotional freedom, and a taking a fresh look at my spiritual walk has complimented my continued pursuit of healing through holistic means.  In this process, I have enhanced peace and contentment in my spirit, renewed my energy, and embraced more clear thinking.  My metabolism has stabilized, and my immune system is stronger.  I'm slowly gaining strength and endurance, and I pray that my sensitivities will continue to improve and eventually resolve themselves as my body continues to heal.  About a year ago, I renewed my grit and determination for something better, believing that God wanted more for me.  I am ready to move forward and embrace new territories of healing in my journey and use my experience to testify to others what God has done in my life!

"For I will restore health to you, and your wounds I will heal, declares the Lord."  Jeremiah 30:17a

For more information about my healing journey from a spiritual perspective, you can read the second part of this article:  http://dzehm.blogspot.com/2017/01/out-of-labyrinth-part-2-lessons-ive.html

RESOURCES

I am not a doctor or an expert on Lyme disease. The information in this article is based solely on personal experience and discussions with other individuals who have struggled with Chronic Lyme disease and is not intended for purposes diagnosis or treatment.

To find a Lyme Literate Medical Doctor (LLMD) in your area, you can search here:  http://ilads.org/ilads_media/physician-referral/

To find out more information about Lyme disease and raising awareness, you can visit the ILADS website:  https://www.ilads.org/

 For more information about Lyme disease and my journey, you can read the following articles I have written.

http://dzehm.blogspot.com/2016/09/the-lyme-labyrinth-crushed-spirit.html

http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering-2.html

The Lyme Labyrinth: a Crushed Spirit Before a Faithful God

"The Lord is near the brokenhearted and saves the crushed in spirit."  Psalm 34:18  

Ten years ago, I would never have thought much about Lyme disease.  My mother-in-law and a few family members were infected with it at one time or the other, but they recovered with antibiotics and moved on.  After experiencing Lyme disease first-hand, that all changed.  Over the past four years, I have written several articles to raise awareness about Lyme disease.  This blog is not intended to be specifically about Lyme disease; however, I have prayerfully considered what I believe God is leading me to write about, and this seems to be where I come back to.  In the story of my Lyme labyrinth, I would like to walk people through the raw pain amidst the battle of treating Lyme disease.  I am not looking for sympathy; however, I am offering validation to those who are suffering with Lyme disease.  People need to know they are not alone, and they need their experiences to be validated by sharing a common ground.  This is for all the courageous Lyme warriors out there and their family members and friends who are fighting alongside them.

INTO THE LABYRINTH

It was a beautiful day in early October.  Fresh air was pouring in through an open window decorated with bright fall mums.  While on the phone with my mom, I noticed a sharp irritating pain on my left foot.  There was an angry red mark on top of my foot that itched like crazy.  I discovered something about the size of a freckle attached to the irritated spot on my foot, and I pulled off the tiniest tick I had ever seen--a deer tick.  My heart skipped for a moment, and I told myself not to worry about the tick bite.  I had just finished treatments a few months ago from a reinfection of Lyme.  The healing process was difficult, but I rallied through.  I also had a horrific battle with Lyme disease in 2011 and never fully recovered, since we had determined that I had undiagnosed Lyme for at least two years.  On that October day, I knew my body was still vulnerable and that a third infection would likely agitate my already compromised nervous system, but anxiety and fear would only make the situation worse.  

My previous symptoms of joint pain and impaired mobility resurfaced so I contacted my practitioner to start up treatments again.  I thought that recovery would be fairly short since we started the treatments right away.  I didn't worry much about it or stay on top of it.  Unfortunately, the treatments did not get it all.  A few weeks later, I was feverish and weak.  When I spoke to my practitioner's office on the phone, they told me they believed I had a more serious case of Lyme this time.  I sat on the side of my bed and sobbed.  I didn't have time for this.  I had a family and a husband who needed me to be well.  My 40th birthday was coming up, and we were planning a trip to see my relatives from Kansas.  I needed to see my parents.  I just didn't want to deal with this all over again!  Realizing I had no choice and knowing what was likely ahead of me, I picked myself up and moved forward. I would just have to take it a day at a time.  

HERXING HORRORS

Many Lyme warriors report that the side effects of treating Lyme can be as painful if not worse than having Lyme itself.  This is because of a reaction called Jarisch-Hersheimer or herxing that occurs when the spiral shaped bacteria known as a spirochete die off and flood the body with toxic substances.  When detoxing certain substances and fighting other infections/diseases, we can also experience herxing or a "healing crisis" which cause temporary unpleasant and upsetting symptoms.  I think herxing from the Lyme spirochetes is much worse and scarier than other detoxes.  Hersheimer reactions can affect everyone differently as well as cycle through the course of treatment and recovery period.  Those of us with compromised immune systems and who are genetically predisposed to impaired detoxification pathways can have more significant herxing reactions.  

For me, herxing manifested in various stages and symptoms that rotated in duration and severity.  My herxing symptoms included both nerve and joint pain, weakness, nausea, intestinal pain, vertigo, tachycardia, heart palpitations, blurred vision, brain fog, air hunger, painful tightness in my chest/ribs, involuntary muscle movements/tremors, and numbness.   My herxing also resulted in severe sensitivities to electromagnetic frequencies and external stimuli such as light, visual movement, noise, and smell.  The joint and nerve pain made it difficult for me to bear weight on my legs, and I wore shorts/loose clothing that did not rub against my body or joints.  At times, the herxing caused a diminished sense of balance and my legs didn't seem to want to work correctly with ambulation, resulting in my falling over.  To lighten things up, my daughter and I would joke that I had a few too many "cocktails."  I remember one day I was trying to walk with my walker and lost control of my legs.   My two sons busted out laughing because it looked like my legs were "running" as I fell onto the couch.  These symptoms were typically upsetting and disturbing for my family, and humor made it easier for us all to cope.  

THE DARKEST HOUR

A few weeks into the Lyme herxing battle, I found myself in the darkest hour, engulfed by waves of pain and weakness.  I was mostly bedridden for almost two months.  Some days, I could barely lift up my head because the room would start spinning every time I moved.  When I tried to get up or stand my heart would start palpitating and I would have involuntary movements in my arms and legs. The bed was next to the bathroom which made things easier for me.  When the weakness and shaking was difficult to manage, my husband helped me in and out of the tub.  He arranged for friends from church, neighbors, and members the VFW help with laundry/light housekeeping and fix my lunch while he was at work.  Our three children did what they could to help with meals, laundry, and picking up. I was too weak to walk on my own so I would crawl around the house and lean on a seated walker for support.   I was determined to keep the household going and would have bouts of crying in pain and frustration over my body that seemed to be failing me.  When my husband found me attempting to do dishes and other chores on my hands and knees, he would admonish me for not asking for help.  Then, he would pick me up and carry me back to bed.  Those were heartbreaking times for all of us.

THE CUP OF SUFFERING

" 'Father, if you are willing, remove this cup from me.  Nevertheless, not my will but yours be done.'... and being in an agony, he prayed more earnestly; and his sweat becomes like great drops of blood falling down to the ground."  Luke 22:42,44

Some people say that the number one cause of death in Lyme disease is suicide.  I can't even begin to describe how hard it is to go through the battle of the Lyme labyrinth.  It is by far the most difficult experience I have ever had.  At my most compromised moments, I was completely overwhelmed by neuro-Lyme symptoms and filled with a sense of dread and fear.  There were moments when any light or sensory stimuli would cause involuntary muscle movements and horrible neurological reactions.  Some nights, I would wake up my heart racing, the room spinning, and a sensation that the bedroom walls were closing in on me while my brain was vibrating with spasms.  My body felt like it was constantly vibrating.  Everything around me seemed to be shaking and racing, and I feared losing control of my arms and legs.  I would take slow deep breaths and repeat phrases like "easy now", "slow down", or "Jesus."  I compartmentalized my thoughts from one minute to the next and talked myself into staying calm while working through the disturbing symptoms.  My life was like waking up in a never-ending nightmare, and I felt very alone and detached.  I was fighting to maintain use of my body and brain. I was fighting for my own sanity.   I didn't think I could emotionally handle the pain and neurological symptoms anymore.  I cried out for God to change my circumstances and lift up my suffering.  I could relate to Jesus's prayer at the Garden of Gethsemane when he was begging God to remove the cup of suffering.  I felt a strong sense kinsmanship to Christ in those moments.  

TRUST THE LORD

"Trust him at all times, O people; pour out your heart before him; God is a refuge for us."  Psalm 62:8

I felt completely alone, yet I had God.  No one else had the capacity to enter those dark places with me because they weren't experiencing them.  It felt like my independence was stripped away, so I had to rely on God each and every moment of the day.  Prayer and the Bible was my only weapon that got me through.  I carried around a ring of note cards with verses on them that I would recite whenever symptoms escalated and the sense of dread and fear threatened to engulf me.  When I cried out to God and begged him to do something, His silence seemed to taunt me.  Then, I closed my eyes and two words echoed like a whisper in my heart... "Trust Me."   

Proverbs 3:5 became a mantra for me as it rang through my mind over and over again.  "Lord, I can't do this anymore!"...  "Trust Me"...  "Haven't I suffered enough?"... "Trust Me"...  "I want to be normal again and able to take care of my family."... "Trust Me"...  "I'm begging you, please make it go away!"...  "Trust in the Lord with all your heart, and do not lean on your own understanding.  In all your ways acknowledge him, and he will make straight your paths."  Proverbs 3:5

He remained by my side, patiently directing me and giving me just enough strength to cope with each moment, but no more.  He was a faithful God, and I embraced His grace and held on to His promises for dear life.  I lost all of my own strength, but I gained a supernatural grace that carried me through.  In those painful moments, I lost pieces of myself, but gained a new dimension of a God that brought me to the other side of my labyrinth nightmare.  In the process I had a deeper understanding of His character and ways.  In the end, I was even able to thank Him for allowing me to share in His suffering and the ability to more fully empathize with the pain of others.  Only God has the capacity to turn something so heartbreaking into a blessing.

REBUILDING FROM THE GROUND UP

I recently read an article that described recovery from Lyme to be like rebuilding your body from the ground up.  That is exactly how I felt.  Lyme can infiltrate every system of the body, tearing down the immune system and acting as a conduit for other diseases and conditions to wreak havoc.   I spent hours poring over books on health, nutrition, gut psychology, and functional medicine; and I implemented some changes in my diet and lifestyle as a result.  My practitioner was very involved in my care and his office kept in touch with me weekly, sometimes even two to three times a week.  They were encouraging and let me know they were praying for me.  My practitioner has experienced a sense of heaviness for his patients with impaired health conditions, and spent much of his free time researching treatment options and the latest studies.  I knew he was doing everything he could to assist me in fighting this disease and rebuilding my body.  

My husband and I recognized that we needed to reach out for help, and I am so glad we did.  The first time I had Lyme, I originally thought I was crazy and had no idea what I was dealing with.  This time, I was much more educated and had a much stronger support network.  Our support network was a tremendous blessing for us, especially our friend Ron who frequently stopped by to help out and drop off supplements/treatments, and he offered rides for appointments.  He was very invested in our situation and offered spiritual encouragement and support to our entire family.

RESTORING LOST GROUND

" I will restore to you the years that the swarming locust has eaten..."  Joel 2:25

This battle with Lyme disease was very eye opening for me, as I came to realize that I had given up hope for recovering from my previous health problems.  I felt guilty for wanting to be healed because I thought I was questioning God's sovereignty.  I felt robbed of pieces of my life over the last six or seven years.  Too many times, I have missed out on family events and gatherings, concerts, ballgames, church worship, and doing "normal" everyday things with the people I loved. I didn't realize the depth of my grief until I experienced more loss.   I also discovered a part of me that was still overly focused on what others thought of me.  Almost everyone in my life have been extremely caring and supportive, but the voices of those one or two people who questioned the legitimacy of my situation and how I was handling it seemed to ring louder than the voices of encouragement.  Despite my forgiveness of others who hurt me, I felt weighed down by painful memories and grief.  

My grief and insecurity reached a turning point when our dear family friend, Ron, advised me to "nail it all to the cross."  He explained that Christ died for that and I don't need to dwell on my insecurities anymore.  When the truth of it hit me, I felt a tremendous joy and exhilaration.  I think I knew it all along, but I wasn't set free from my grief until I was torn down once again and lifted up by the hands that were once nailed to a tree.  I could trust in God's sovereignty and will free of the guilt. When I am in the perfect will of God, NOTHING else matters!  God wants me to look up and ahead towards His promises instead of down and backwards to where I've been.  He is by my side, calling me to fight for my health and not give up on gaining ground back in my life.   God has been faithful to me through each hardship, and I am grateful for joyful gifts He delivered out of my crushed spirit. 

"It was good for me that I was afflicted, that I might learn your statutes.  The law of your mouth is better to me than thousands of gold and silver pieces.  Your hands have made and fashioned me; give me understanding that I may learn your commandments.  Those who fear you shall see me and rejoice, because I have hoped in your word.  I know, O Lord, that your rules are righteous, and that in faithfulness you have afflicted me.  Let your steadfast love comfort me according to your promise to your servant.  Let your mercy come to me, that I may live..."  Psalm 119:71-77

RESOURCES

I highly recommend this video that visually demonstrates a heartbreaking yet redeeming battle with Lyme disease:


https://www.youtube.com/watch?v=So2K68r8pOY&feature=youtu.be

*I am not a doctor or an expert on Lyme disease.  The information shared in this article is based solely on personal experience and is not intended for diagnosis or treatment.  For more information about Lyme disease and my experiences with it, you can read other blog articles I have written:

lhttp://dzehm.blogspot.com/2012/11/enduring-winter-my-battle-with-lyme.html

http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering.html

http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering-2.html

lhttp://dzehm.blogspot.com/2015/07/the-good-fight-my-lyme-relapse.html

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Care in our Culture Part Two: Invisible Illnesses and Holistic Medicine

"Put on as God's chosen ones, holy and beloved, compassionate hearts, kindness, humility, meekness and patience."  Colossians 3:12

THE WIDENING GAP

In the fall of 2013, I watched my dear friend and mentor victoriously battle through the end of her cancer journey as she left behind a legacy of faith and courage.  Although there was some controversy with her decision to treat her cancer holistically, neither she nor her family expressed any regret in this decision.  Her desire was to raise awareness about the value in taking care of your body and engaging in a healthy lifestyle.  She was also very passionate about educating people, especially the church, about providing compassion and care for those who struggle with chronic conditions and invisible illnesses.  Around the time of my friend's death, I became increasingly aware of the widening gap in our culture, the medical community, and in the church when it comes to understanding and showing compassion for individuals struggling with these conditions, especially for those who choose to use alternative healthcare.  

Several of my friends and acquaintances who battle invisible illnesses and use alternative healthcare have shared with me their personal struggles of being hurt by criticism and insensitive comments from family, friends, and members of their church.   After spending some time in prayer and having discussions with a few Christian holistic practitioners in my church as well as my friends with chronic/invisible illnesses, I felt compelled to speak up on their behalf.  This led to some enlightening conversations and discussions involving the lead pastor and elders of my church.  They have been very open and understanding in regards to this gap.  I believe that most people have a desire to be of service and support to others; however, they may be unaware of how to help and they lack understanding of the struggles that this vulnerable group faces.  A chronic condition embarks each individual on a very personal journey that can be extremely draining--physically, emotionally, and financially.  In order to foster care and compassion in our culture, it is imperative we understand how the condition affects the individual and their unique experience that has led them to use a specific medication, treatment, or therapy for their condition.

WHAT IS HOLISTIC HEALTHCARE?

Complementary and Alternative medicine, or CAM, is a broad term used to describe a variety of therapies and medical interventions that are available through different types of health care providers.  These providers use alternative approaches to address certain diseases and/or conditions.  Chiropractors, acupuncture therapists, holistic or naturopathic doctors, massage therapists, nutritionists, and Field Control Therapy (FCT) practitioners are some of the more commonly known CAM providers.  CAM focuses on and addresses the whole person, viewing the mind, body, and spirit as interwoven together.  CAM differs from conventional or allopathic medicine.  Each approach to heath care has its place and benefit.     

Why People Choose Holistic Healthcare

●      Some desire a healthier lifestyle and prefer not to take medications or undergo invasive therapies that may expose them to radiation or other harmful substances.  

●      Adequate health insurance coverage has become more difficult to obtain over recent years and medical costs continue to rise.  Supplements and alternative treatments/therapies sometimes are significantly less expensive than the prescriptions, tests, and standard treatments/therapies that conventional healthcare offers. 

●      People often choose CAM because they are struggling with a health issue that conventional medicine has not been able to fully address.  Some have come across medical practitioners who have been unkind to them, blaming the patient or minimizing their situation when conventional medicine failed to appropriately treat their condition. 

●      Holistic practitioners treat the whole person, and they are more likely to provide services and treatments with compassion and greater sensitivity to what the patient is going through.

●      There are countless testimonies of individuals who have successfully treated their illness/condition naturally with nutrition, supplements, and non-invasive therapies.

*There are no guarantees that either conventional or alternative medicine will heal the person.  Only Jesus Christ has the power to heal and restore lives. 

Challenges and Struggles People Face When Using Holistic Healthcare

●      CAM Therapies seek to address imbalances that can lead to a disease or condition.  Often, the longer an individual has had a health challenge, the longer the length of time before the individual sees improvement and/or recovers.  In my situation, it took at least a couple of years of therapies before I saw significant improvements.  Then, when I was reinfected with Lyme disease twice in 2015, I lost a lot of the ground I had gained.  It takes a great deal of patience, faith, and prayer to endure. 

●      CAM therapies may include a process of eliminating harmful substances that can cause some individuals to have temporary unpleasant symptoms in order to detoxify and heal.  I have found that when I am being treated for the root cause of a symptom, that symptom will worsen for a time before it gets better.  That can be somewhat frightening if you do not understand what is happening.

●      Alternative practitioners do not focus on a diagnosis but can often identify factors such as the presence of harmful substances or conditions that appear to be associated with the symptoms being experienced.  This approach to health can be difficult for a patient to explain to others and can make CAM appear less believable when they are unable to do so. 

In my experience, some individuals who use CAM to treat their health conditions can feel isolated and may become withdrawn or depressed.   I believe there are several reasons for this, including the following. 

●      There is a prevailing attitude that Conventional Medicine is superior to CAM.  Conventional Medical professionals may not be aware of the extent of research or level of success CAM has had in helping individuals with their health challenges.

●      Family members and friends may not understand the holistic treatments/therapies the person is utilizing and question the legitimacy of alternative therapies.  They may also minimize the individual’s condition or suggest they see a doctor without taking the time to understand the specific circumstances.

●      There can be a perception in the Christian community that CAM involves New Age, false religions, and deceptive practices.  Well-meaning Christians may verbally reprimand the person, telling them they are deceived and practicing something that is “spiritually wrong.”  

  I have talked to a few Christian alternative healthcare practitioners about this and they all have openly admitted that in this venue of healthcare there are practices and practitioners that utilize New Age and other pagan philosophies that should be avoided.  They have told me there is a line you draw and don’t cross—that is where prayer and discernment must come into play.  On the other hand, God is holistic in nature and He uses many ways to heal and provide healing. I believe there are many legitimate alternative therapies out there that do not cross this line.

*When individuals are both physically and emotionally vulnerable and family/friends as well as those in the church body speak words of judgment and scorn without trying to learn more about the therapies the person is doing and why they have chosen holistic healthcare, those individuals have the potential to shut down emotionally and isolate themselves from others, feeling as though they have to face this journey alone!  We as a church should be aware of this situation so we can Bridge the Gap for them!

A HUMBLE LEGACY- KELLY'S STORY

"My heart and flesh may fail, but God is the strength of my heart and portion forever."  Psalm 73:26

When Kelly Peterson was diagnosed with breast cancer in 2010, she made the informed decision to treat her cancer holistically despite the overwhelming fear, scorn, and opposition from doctors and other people in her life.  She had an incredible support system throughout her cancer journey; however, she also received criticism from those who disagreed with her decision to use alternative healthcare.  She also witnessed the loneliness and isolation of others with similar experiences.  Instead of feeling sorry for herself or holding on to any resentment towards others, Kelly let it go to God and trusted His guidance to use her situation as an opportunity to help others.  Kelly decided to use her insights to take action and instigate change.  In the last 2 years of her life, she took notes for a book she planned to one day write.  Her goal was to guide individuals with family/friends who have cancer or a chronic illness and use alternative therapies to treat their conditions.  She also wanted to educate the church body on how to better assist and care for these individuals.  Although Kelly did not have the opportunity to complete her book, she did put together a list of the insights that she discovered during her journey.  Kelly's family has expressed a strong desire to share these notes with the public in order to raise awareness about individual needs and to improve the quality of life for those facing these struggles.  The following information was derived directly from Kelly's notes and personal observations.  

How to Help and Encourage Someone with an Invisible Illness or Chronic Condition 

• Remember that they are sick and trying to fight a disease/condition, even if they may not LOOK like it.
• It is more beneficial to LISTEN and be there for the person instead of questioning if their illness is real or not, questioning the legitimacy of their treatment/therapy, or offering excessive advice.
• Sympathize and be understanding of where they may be at or may be feeling (mourn with those who mourn).
• While it IS good to ask them how they are doing, don't let that be all you ask them.
• Tenderly, tactfully, and timely speak hope into their hearts and minds.
• Rejoice with them in their small victories.
• Call periodically and ask them how they are doing.
• Pray with them in person and on the phone.
• Send cards with notes and prayers of encouragement.
• Send unexpected flowers to brighten their day.
• Show them genuine interest in their treatments/protocols by listening and asking SPECIFIC questions.
• Offer to do some research online for them.
• When telling someone "let me know if there is any way that I can help", keep in mind that while you may think this is helpful, it is not because #1) It is very hard for anyone to ask for help and #2) They have so much going on they do not have the time or energy to think of ways you can help and sometimes they are just trying to make it through the day.  Instead come up with specific ways in which you can offer to help.
• If you live near the person, ask them, "Would it be helpful if I texted you before I run errands so that I can pick something up for you?"
• If they are housebound, offer to run errands, grocery shop, take their kids shopping, etc.
• Offer to do some chores and clean for them so they can rest, i.e. vacuum, laundry, cook meals, clean bathrooms/kitchen, etc.
• Offer to help "declutter" their homes, work on the computer for them, or assist with other household tasks.
• Offer to take their kids out for the day or weekend-- the situation can be very stressful and upsetting for the children.
• Offer to do seasonal outdoor chores, i.e. plant flowers, weed garden, mow lawn, shovel driveway, rake leaves, wash windows, clean gutters, etc.
• Put together a support team for them.
• Organize a phone chain where people are calling regularly to check on them.
• Coordinate the regular delivery of meals for them and their family (ask about specific diet restrictions).
• Coordinate a schedule of individuals to help with daily chores/house cleaning, rides to appointments, and other needs.
• Assist in putting together a schedule of daily protocols for alternative therapies.
• Get them a massage (great for the lymph system) or offer to take them out to see a comedy show (laughter is good medicine!).
• If you live in the same household, adopt a healthier/similar diet. 
• Help reduce any unnecessary stress in their lives, i.e. relational/family, work-related, household clutter, etc.
• Read some of the books they are reading with them.
• Go to appointments with them and/or drive them there if they are not physically able to drive on their own.

What the Local Church Can Do To Help

• Arrange for elders in the church to pray with them and anoint them with oil.
• Coordinate individuals to call and/or come to their homes to pray with them on a consistent basis.
• Call and check on them regularly.
• Post specific needs on a website or email.
• Coordinate financial assistance, offerings, donations, etc.
• If they are unable to physically leave their homes, offer to bring "church" to them by singing worship songs with them, studying the Bible together, etc., as they may be yearning for the fellowship and spiritual connection that occurs in corporate worship.

How to Assist Individuals Financially

• Coordinate a fundraiser to offset medical costs, treatments, and therapies.
• Ask what therapies they are doing and if you can pick something up or help pay for it.
• Offer to pay for one supplement each month.
• Offer to buy a piece of at-home medical equipment or device/treatment.
• Deliver organic groceries to them.
• Offer to purchase a book they have expressed a desire to read in order to learn more about their disease or condition.

BRIDGING THE GAP AS A CHURCH

"What good is it, my brothers, if someone says he has faith but does not have works?  Can that faith save him?  If a brother or sister is poorly clothed and lacking in daily food, and one of you says to them, 'Go in peace, be warmed, and filled,' without giving them the things needed for the body what good is that?  So also faith by itself, if it does not have works, is dead."  James 2: 14-17.

We as a church have the opportunity to show support, compassion, and minister to individuals in their unique and vulnerable situations, but we can’t do that without understanding their struggles and taking the time to hear them out.  It is crucial that we are made aware of these issues so that we are better equipped to help and come alongside them.  I believe that God can equip us to come together as a people with compassion, love, humility, and forgiveness when necessary.  We just need to open our hearts and our eyes to see where He leads us and the love He provides.  Then, we are able to bridge the Gap!

"Finally, all of you, have unity of mind, sympathy, brotherly love, a tender heart, and a humble mind."  1 Peter 3:8

RESOURCES

To see the first part of this article on Invisible Illnesses/Disabilities:

http://dzehm.blogspot.com/2015/10/care-in-our-culture-part-1-invisible.html

For more information about Kelly's story, alternative healthcare, and how to help individuals with chronic illnesses, you can read these blog posts.

http://dzehm.blogspot.com/2014/05/kellys-hope-womans-life-legacy-and.html

http://dzehm.blogspot.com/2014/06/kellys-hope-part-two-building-on-legacy.html

http://dzehm.blogspot.com/2014/08/kellys-hope-part-three-bridging-gap.html

http://dzehm.blogspot.com/2015/02/the-voices-of-lyme-voice-of-battle.html

http://dzehm.blogspot.com/2013/11/health-wellness-and-beauty-of_4739.html

http://dzehm.blogspot.com/2013/06/embracing-wellness-through-alternative.html