"Bless the Lord, O my Soul and all that is within me, bless his holy name! Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, who satisfies you with good so that your youth is renewed like the eagles." Psalm 103:1-5
In my last blog article, The Lyme Labyrinth, I explored the crushing labyrinth of my chronic illness in describing the raw pain that is experienced in battling this debilitating disease. After years of seeking out God's sovereignty in my physical and emotional struggles with chronic illness, my life was once again completely flattened by a major relapse of Lyme in the fall of 2015. It truly was a wake-up call, like a bucket of ice water to open my eyes to the truth of my situation. Towards the end of my relapse, I saw a need to change my focus and perspective of my health and life. Although I never lost faith, I saw a diminished reflection of hope and needed to recharge my drive to thrive. With renewed resolve to move forward, I was determined to do whatever I could to fight back.
My healing journey through Lyme and chronic illness has involved a complicated process of unveiling layers of multiple root causes and using various disciplines and techniques for recovery. As I reflect on my labyrinth experience, I would like to take a moment to look back at my chronic illness and the steps I have taken to heal through the recovery and aftermath of being infected with Lyme disease several times over a period of approximately eight years as well as touch on information that other Lyme warriors have shared about their healing journey.
LYME AND CHRONIC ILLNESS--BEYOND THE LABEL
When we experience health problems, we have this desire to name what is wrong with us, as if a name itself can bring healing and relief. We feel validated when we have a label or diagnosis to describe our situation. It is easier for me to tell people my diagnosis is chronic vertigo and fibromyalgia secondary to chronic Lyme disease rather than trying to explain my unusual list of symptoms. When I finally did have an official medical diagnosis, I was relieved to have a name for my condition, but honestly these words just scratch the surface of the depth and complications of my situation. Just the other day, I was having an online conversation with my Christian Lyme support group about this very subject. Another warrior said that we can't blame Lyme disease on all of our symptoms. Although many Lyme warriors respond to treatment, those of us who do not recover have common similarities in experiencing other chronic health problems that compromise our immune systems. Chronic Lyme sufferers frequently describe battling multiple health issues such as hormone and electrolyte imbalance, leaky gut/imbalance in beneficial intestinal bacteria, pots syndrome, methylation issues/impaired detoxification pathways, histamine problems, mast cell disease, chronic inflammatory disease, and other autoimmune conditions. Lyme is also usually accompanied by other chronic infections, Lyme co-infections, and parasites that may require multiple approaches to alleviate. I've stated in previous articles that Lyme is a conduit for other infections to take over the body and cause general imbalance of the body chemistry. In these situations, we can be left behind with a mess of problems to address.
FINDING THE RIGHT PROTOCOL
"Many are the afflictions of the righteous, but the Lord delivers him out of them all." Psalm 34:19
Chronic Lyme disease is a condition that many in the medical community deny its existence, and practitioners who are aware of this disease know that they are at risk for losing their medical license with practicing recommended medical interventions. Treating Lyme is as controversial as the disease itself, and there are a myriad of options available if you know where to start.
Most "Lymies", as individuals in the Lyme community often call themselves, recommend getting tested through a company called IGeneX as the results are more accurate than the Western Blot and other CDC standard tests which often have false negative results. "Lymies" also recommend you see a Lyme Literate Medical Doctor (LLMD) or a practitioner who specializes in Lyme disease. LLMD's follow a specified symptom-based protocol for diagnosing Lyme disease and also specialize in identifying common co-infections and viruses that frequently coincide with Lyme. LLMD's will often use a combination of long-term antibiotic therapies and supplementation to treat the disease/co-infections and accompanied side effects and symptoms. Some Lyme warriors declare antibiotics to be the best course of treatment; however, there is much controversy over the side effects of long-term use of antibiotics. Some LLMD's may not take insurance, and insurance companies will not pay indefinitely for antibiotics which makes services and treatment protocols very expensive. I think the use of long-term antibiotics should be a personal decision based on various individual preferences and other factors.
Another medical option for treating Lyme and chronic illness is finding a good functional medicine doctor or practitioner who is familiar with Lyme disease. Functional medicine practitioners look at the whole person and often integrate both traditional and holistic approaches to medical care. They tend to be more open to working with alternative practitioners and are understanding about controversial medical problems such as chronic Lyme. There are some Functional medicine MD's that specialize in Lyme and other chronic infections. Other individuals in the Lyme community have completely switched to herbal and alternative therapies/protocols such as the Buhner protocol, Cowden protocol, essential oils for healing, Bee Venom Therapy (BVT), infrared laser therapy, and energy therapies.
Many of these protocols and therapies have been successful for treatment and recovery of Lyme disease but there is no approach that works the same for each person and their unique situation. When deciding on a Lyme protocol, I recommend researching options on the internet, joining an online/Facebook support group to discuss options with others who have been through it, and talking to individuals with expertise in Lyme disease. Taking these steps will make it easier to make an informed decision. For those who haven't found the right option yet, I would encourage them not to give up, as I have seen firsthand that there is no "one size fits all" approach to treating Lyme disease and other chronic illnesses.
In the fall of 2011, I started Lyme treatment with a round of the antibiotic doxycycline, and then I tried the Buhner protocol using herbs for killing Lyme and other infections. Both courses of treatment caused me to have adverse die off reactions and side effects that were debilitating. At that time, I didn't have a Lyme practitioner to oversee my care, and I had a difficult finding an affordable LLMD that could get me in for an appointment. I sensed that this was not the route for me because of expenses involved and my extreme sensitivities to chemicals, medications, and herbal remedies. After doing some research and spending a considerable amount of time in prayer, I chose Field Control Therapy (FCT) as my preferred treatment plan as it was less invasive and seemed to be the best option for my situation. I also have received medical evaluations from a traditional medical doctor who practices functional medicine and has been very supportive of my treatment plan. I feel very fortunate to receive excellent care from multiple disciplines.
MOLD AND OTHER TOXINS
I have had conversations with several individuals with chronic Lyme who also have chronic health issues related to exposure to mold and other toxins. Toxic mold exposure is very damaging to the body and nervous system and can have similar effects to the body as Lyme disease itself. There are various types of mold, both indoors and outdoors. It is impossible to avoid mold all together but critical to identify and alleviate the problems to the best of our ability. It is also important to decrease our exposure to chemicals, air fresheners, and perfumes as we are healing our bodies, brains, and nervous systems. Using natural fragrance free products and cleaners can help alleviate this problem. I avoid household chemicals such as chemically based cleaners, bleaches, air fresheners, and fabric softeners. I also use a lot of personal products and soap that are hypoallergenic and declared to be "free and clear." I make it a point to read labels in order to reduce toxic exposure in the house and on my body.
CHOOSING A DETOXIFICATION PLAN
Lyme disease carries various toxins which are released when the spirochetes die off, causing an adverse reaction of very unpleasant and sometimes frightening symptoms. This process is called Jarisch-Hersheimer or herxing. For this reason, a good detoxification protocol is often recommended for fighting Lyme and chronic disease. Some individuals use natural therapies and supplementation for detoxification such as essential oils, activated charcoal, and coffee enemas. Field Control Therapy provides a gentle non-invasive and uniquely personalized energy-based detoxification process that helps the body to stop the vicious cycle of recycling toxins through the system. The inability to effectively eliminate toxins is a common problem with individuals who have impaired detoxification pathways. Because many detoxification protocols can cause herxing and other side effects, I recommend using them with the supervision of a Lyme practitioner.
I spend the first part of my morning using inexpensive natural means to enhance my detoxification process. Upon awakening, I drink a dash of raw organic apple cider vinegar in a glass of bottled water enhanced with minerals from a Himalayan rock solution. This replenishment beverage rejuvenates me and gives me energy to start my day and the detoxification process. Then, I spend a brief amount of time on a rebounder and use dry brushing to activate my lymphatic system so that my body more easily detoxes. Afterwards, I take a natural detox bath using products such as epson salts (though I don't personally use epson salts, many prefer this method of detoxification), apple cider vinegar, baking soda, or organic ginger spice. While in the tub, I do oil pulling therapy using organic unprocessed coconut oil to pull out oral bacteria. At breakfast time, I juice organic vegetables for further optimization of my detoxification. Our bodies do most of our detoxing before 10 AM so it is important to do these protocols first thing in the morning before eating anything.
COMPLIMENTARY THERAPIES
There are many complementary therapies that may work well with Lyme protocols such as homeopathic therapies, acupuncture, massage, and chiropractor care. I would caution individuals in using some of these therapies while actively treating Lyme as they all will release toxins and may be too much for the body to handle at once. The ability to tolerate complementary therapies is based on the individual's body chemistry and over all reaction to the therapy, and it might be a better option to start them after completing antibiotics and other Lyme therapies. Since I am done with treating Lyme disease and other co-infections, I am currently in the recovery stage of rebuilding my immune system and repairing damage to my nerves. In addition to the alternative therapies to help in this process, I take various mineral supplements to enhance my overall immune system and health. I also routinely see a chiropractor who specializes in cranial sacral therapy for a previous head injury that has contributed to my vertigo and other neurological symptoms. Cranial sacral therapy does release toxins and it usually takes me a few days to recover from a session so my alternative practitioner has me take a personally designed FCT protocol to help my body to process and eliminate these toxins.
DENTAL HEALTH
Good dental health is also important for treatment and recovery from Lyme and chronic disease. When we have an active infection in our mouth, it further compromises the immune system. Dental amalgams comprised of mercury, metal implants, and root canals can also contribute to the problem; however, there is controversy in the medical and dental community regarding the harm of amalgams and other dental procedures. Several years ago, my immune system was compromised by an underlying infection surrounding my metal crown, and I also experienced some unusual side effects from my dental amalgams and implant metal. When the infection around my metal crown spread into my neck, I made a dentist appointment to have the infected metal crown removed and replaced with porcelain. It took me approximately 3 years to save up the money to address all of my dental problems. Unfortunately, my hesitation to take care of them right away caused a delay in my physical healing. Although it took time to recover from the procedures, I did not regret my decision to safely remove all amalgams and other metal from my teeth. For those who would like to take a serious look at these issues, I recommend finding a biological/holistic dentist or someone who at least has the proper equipment to safely remove dental amalgams as the mercury vapors can be released into the mouth which can be dangerous for both the patient and the dental staff. To find a holistic dentist in your area, you can search this website: http://www.holisticdental.org/
NUTRITION AND DIET
When battling Lyme, our physical system and body chemistry can become compromised, and inflammatory foods may exacerbate symptoms. Lyme disease and antibiotic therapy often have a dramatic effect on the intestinal tract, causing an imbalance of beneficial bacteria and an overgrowth of candida. Candida and leaky gut can wreak major havoc on the body and immune system, leading to food allergies and sensitivities, anxiety, and neurological side effects. I have struggled with multiple food sensitivities for several years which increased in severity during my relapse in 2015. Although I did not eat any fruit, grains, or sugar, the candida in my system was reacting with natural sugars from starchy vegetables in my diet producing acetaldehyde (a byproduct of alcohol) causing me to have severe brain fog, vertigo, and other neurological problems. My body was having difficulty processing foods high in sulfur and was converting the sulfur to ammonia and formaldehyde. My practitioner put me on a anti-inflammatory paleo and ketogenic diet in which I severely restricted both foods high in carbs and sulfur. My practitioner also expressed concern that my immune system seemed to be attacking my myelin which was causing nerve damage and a disruption of communication in my brain and nervous system. He told me that consuming fats was the best way to rebuild myelin. I significantly increased my intake of healthy fats by incorporating organic unrefined olive oil, ghee (clarified butter), and organic lard in my diet. My practitioner put me on evening primrose oil as well as omega 3 and 6 essential fatty acids to expedite the process of rebuilding my myelin. Although the diet changes seemed to be helping, I felt I needed to make more alterations to enhance my diet. Last spring, I started the Gaps (Gut and Psychology Syndrome) diet in order to heighten the healing of my intestines, brain, and nervous system as well as rebuild my immune system. I have found nutrition to be a critical element of my healing process. Over time, I have retrained my body to appreciate food for its nourishing quality. My tastes have changed dramatically in which I could enjoy good high quality nourishing foods without craving sugars and other potentially damaging foods that inflame the body and suppress the immune system.
ELECTROMAGNETIC FREQUENCIES
I would have to say that the most bizarre and difficult aspect of coping with chronic Lyme has been my severe sensitivities to lights and electromagnetic frequencies (emf's) from fluorescent lights, electronic devices, computers, cell phones, satellites, and especially WiFi. It makes it very challenging for me to travel and visit public places that have strong emf's such as hospitals and schools. Some Lyme practitioners encourage their patients to take whatever measures they can to reduce emf's by shutting off/removing WiFi, unplugging microwaves and other appliances, limiting cell phone/tablet usage, and using the speaker phone feature instead of putting the phone by your ear. We made some dramatic changes in our household to address my emf sensitivities. First, we got rid of all of our fluorescent lights and replaced them with traditional bulbs. We did some frequency testing in my house to locate the most significant problem areas. As result, we took the TV and other electronic devices out of our bedroom and removed all of our cordless phones. We also purchased specific devices for our house and my cell phone to help with these sensitivities. We have experimented with veterinary magnets that we have placed on the electrical box outside of our house, and we strategically placed the magnets in specific areas of the house and our vehicles. We tried shutting off our WiFi when we weren't using it but my sensitivity was severe enough that we made the decision to remove it all together. When I joined a chronic Lyme online support group, I was surprised to find out how many people share in similar struggles, although the level of sensitivity varies from person to person.
EXERCISE AND REHABILITATION
In my last article, the Lyme Labyrinth, I described recovery from Lyme as "rebuilding from the ground up." Years of battling Lyme, co-infections, and other pathogens left me with low muscle tone and a weak body. In 2011, I was participating in a fairly aggressive physical therapy program that specialized in vestibular therapies for vertigo and balance disorders. When I initially started treatment for Lyme disease, I had to stop the program all together. I attempted several times to start up my exercise program but pain, weakness, tachycardia, air hunger, vertigo, and other neurological symptoms were significant barriers for me. After my relapse in 2015, I was determined to fight back and rehabilitate my body. I used my local online library consortium to find exercise books and videos that were low impact and were adaptable for my physical impairments. I started off with basic stretches and breathing exercises. At first, muscle cramps, weakness, fatigue, and vertigo slowed down my progress but I did not give up. With a few alterations, I have been able to work up to a vestibular physical therapy program comparable to my previous exercise program. I am currently working on building muscles and core strength as well as counteracting my chronic vertigo and correcting issues with my posture and spine. Good posture and stomach breathing is excellent for relaxing the parasympathetic nervous system and helps regulate breathing. In addition to rebuilding my strength, I am hopeful to build up my endurance so that I will be able to eventually start walking again without needing a wheelchair and other devices for longer distances.
EMOTIONAL FREEDOM
"Why are you cast down, o my soul, and why are you in turmoil within me? Hope in God; for I shall again praise him, my salvation and my God." Psalm 42:11
Our emotional health is an essential aspect of breaking free from the labyrinth of chronic disease. I believe this area can be easily misconstrued or distorted in our healing journeys. I have spoken with several individuals who were misdiagnosed with mental illness during the process of seeking a diagnosis for their chronic health issues. Unfortunately, these brave warriors have been weighed down with unnecessary guilt and grief, questioning the legitimacy of their debilitating symptoms. There are major emotional components involved in this very complicated labyrinth of symptoms and stressors which can cause anxiety, depression, and hopelessness. I think it is important to unveil the source or root cause of these emotional symptoms.
The emotional element of my personal healing process involved bio-chemical and hormonal imbalances that have taken time to resolve through diet, supplementation, and energy therapies. Additionally, it was necessary for me to sort through layers of emotions and grief as well as coping with a chronic condition that has robbed me from certain aspects of living a "normal" life. This has been a very personal spiritual journey for me as God has helped me to unveil these layers of grief and release them through forgiveness, meditation, prayer, and simply having the courage to let them go. Over the summer, my alternative practitioner started working with me on emotional freedom and healing through grief and past traumatic events. The initial phase of this process was rather emotional for me, and I felt both physically and emotionally exhausted afterwards. As I navigated through process of letting go and releasing these emotions from my conscious mind, I experienced a supernatural peace in my spirit as though a heavy weight was lifted off my soul. It has truly been a wonderfully joyful and freeing experience for me.
I believe that our conscience holds on to certain information that can block or act as barriers for our healing. I am NOT in any way saying that the individual is to blame for their illness or struggles. I want to encourage those who are struggling with chronic health concerns and feel stuck in their situations to let go of the guilt and self-blame, as this type of thinking can be both physically and emotionally draining. Unveiling these barriers is a slow process in God's timing as He knows exactly what we need and has a greater purpose for us in the process of discovery. Forgiveness is a critical first step, as we take time to forgive ourselves, others, and God. Then, we can truly open our hearts to the love of God and His healing power. Trust that God will reveal in the right time what needs to be done. Only God knows when we are ready to release our hurts and griefs. In trusting our gentle and loving Redeemer, we can can find emotional freedom one step at at time. Christians sometimes call this process renewing the mind or finding freedom in Christ. Others may call it emotional freedom techniques (EFT), the power of intention, or practicing mindfulness. Whatever we choose call it; God wants us to let go of our past and be free!
"O Lord my God, I cried to you for help, and you have healed me... you spared me from going down to the pit." Psalm 30:2,3b
Recovery from Lyme and Chronic Illness has been a very complicated and lengthy process for me, navigating through a labyrinth of symptoms, processes, moments of healing, and multiple setbacks. Exploring new venues for exercise, nutrition, cranial sacral therapy, relaxation techniques, emotional freedom, and a taking a fresh look at my spiritual walk has complimented my continued pursuit of healing through holistic means. In this process, I have enhanced peace and contentment in my spirit, renewed my energy, and embraced more clear thinking. My metabolism has stabilized, and my immune system is stronger. I'm slowly gaining strength and endurance, and I pray that my sensitivities will continue to improve and eventually resolve themselves as my body continues to heal. About a year ago, I renewed my grit and determination for something better, believing that God wanted more for me. I am ready to move forward and embrace new territories of healing in my journey and use my experience to testify to others what God has done in my life!
"For I will restore health to you, and your wounds I will heal, declares the Lord." Jeremiah 30:17a
RESOURCES
I am not a doctor or an expert on Lyme disease. The information in this article is based solely on personal experience and discussions with other individuals who have struggled with Chronic Lyme disease and is not intended for purposes diagnosis or treatment.
To find a Lyme Literate Medical Doctor (LLMD) in your area, you can search here: http://ilads.org/ilads_media/physician-referral/
To find out more information about Lyme disease and raising awareness, you can visit the ILADS website: https://www.ilads.org/
For more information about Lyme disease and my journey, you can read the following articles I have written.
http://dzehm.blogspot.com/2016/09/the-lyme-labyrinth-crushed-spirit.html
http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html
http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering.html
http://dzehm.blogspot.com/2015/03/the-voices-of-lyme-voice-of-suffering-2.html
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