(the voices of Lyme) The voice of Youth: Logan's Story

"The righteous cry out, and the Lord hears them; he delivers them from all their trouble.  The Lord is close to the brokenhearted and saves those who are crushed in spirit." Psalm 34:17-18

THE VOICE

As parents, we desire to see our children happy and healthy.  We have dreams and aspirations for their futures.  When a child becomes afflicted with an illness, our lives are rocked and our resolve crumbles under the weight of worry and distress.  What a helpless feeling to watch a son or daughter struggle day in and day out, barely hanging on--especially when the cause of the illness is unknown and doctors are baffled by the debilitating symptoms.  Unfortunately, this scenario happens all too often for today's youth who are suffering from Lyme disease and have limited access to diagnosis and treatment.

Seven years ago, Gerard and TeriLynne Haverkamp realized their worst nightmare as they watched their beautiful and vibrant daughter, Logan, fade under the devastation of piercing pain and severe weakness.  When I first heard about ten-year-old Logan's battle with Lyme disease, I was moved by her story of courage.  Logan's experience has become a voice for children who suffer silently from this devastating disease and the parents who are fighting for the very lives of their children.

THE VALLEY

Logan's battle began in August of 2007, just a few days after starting fifth grade.  She woke up with a severe headache and flu-like symptoms.  When Logan attempted to walk to the kitchen that morning, she had to lean against the wall for support.  Earlier that week, Logan noticed what appeared to be two small pimples below her right knee cap.  Her mom, TeriLynne, popped them because they were irritating her.  Afterwards, Logan cried for two hours from intense pain.  Logan's flu-like symptoms were so severe that she was hospitalized with a diagnosis of aseptic meningitis.  Logan's condition did not improve after her hospital stay.  Several weeks later, her concerned parents brought her back to the doctor for another evaluation.  The physician told them that Logan was obviously faking her symptoms and prescribed medications for pain and anxiety.  Meanwhile, Logan was debilitated by intense pain in her legs/joints, painful sores in her ears, severe headaches that caused extreme light sensitivity, and changes in her vision.  The pain and weakness impaired Logan's ability to ambulate, and she had extreme difficulty walking.  Her family used a chair with wheels to push her from room to room.  Logan was sometimes so weak she was unable to turn over in bed and her parents needed to assist her with repositioning.  Logan also had neurological symptoms and short-term memory loss for about a year.

Logan's parents were determined to get to the bottom of what was going on with their daughter.  They were persistent in pursuing a doctor who was willing to investigate the source of her symptoms.  Gerard and TeriLynne took her to various practitioners, pressing for answers and more testing.  Logan was seen by several general practitioners, two physician assistants, and two neurologists.  She received a myriad of labs and invasive tests with no definitive results or a diagnosis.  TeriLynne was heartbroken to watch her precious girl suffer so much without knowing why. "I felt like I couldn't get anyone to listen to Logan or for that matter just look at her.  She was always so full of life, ready to jump in and do anything that came her way.  When I looked into her eyes, it was like the light was just gone and that is something no parent wants to see."      

Logan's mysterious condition had a tremendous impact on her everyday life.   She missed more than 56 days of her fifth grade year, and she began to fall behind in school.   Logan's teacher periodically stopped by the house to see Logan and review tests/assignments.  Logan once answered "cat" for one of her math test problems, stating "It just popped up out of nowhere."  Unfortunately, not all the teachers at the elementary school understood her situation.  Logan and her parents were discouraged to find out that some of the teachers believed that Logan was faking her symptoms, stating that her parents should not let her get away with missing so much school.  Logan felt depressed and isolated as she was housebound, unable to spend time with her peers, go to ball games, and engage in normal activities for a ten-year-old.  "I just wanted to be a normal kid and hang out with my friends.  I couldn't even do that.  I wanted people to just hang out and play with me, not think that I was making my sickness up."

Logan, two days prior to coming down with flue-like symptoms in 2007

THE LIGHT  

Logan was thankful for her friends that were supportive and seemed to believe that she was truly sick.  Logan recalled receiving a sunshine box from her fifth grade classmates, which really pleased her.  Although Logan found herself in an extremely terrifying and lonely situation, she and her parents did not give up.  After months of doctor's visits, tests, and still no answer, everything changed with one phone call.  One day, the Kansas Department of Health contacted TeriLynne at work to find out how Logan's Lyme disease was doing.  TeriLynne was shocked because no one ever brought up Lyme as a possible diagnosis.  It was as though a light was turned on in the darkness and Logan's family finally had the answers they were desperately seeking.

THE HOPE

Gerard and TeriLynne were relieved to be able to pinpoint a diagnosis for Logan's debilitating and painful illness.  They immediately got her in to see a general practitioner for antibiotics.  After doing some research, they found a Lyme specialist in Missouri who agreed to take on Logan as a patient.  Logan was put on antibiotics for a year and a half.  It took her that long to feel normal again, although she did have problems with her reflexes for a few years.  Logan leaned on her supportive family and faith in God during her recovery.  "I learned that I can be strong with the help of my family.  With them and my faith, anything is possible and I can overcome anything.  I was never alone."

THE FUTURE

" 'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future.  Then you will call upon me and come and pray to me, and I will listen to you.' "  Jeremiah 29: 11-12  

Logan is now a high school senior, and her experience with Lyme has matured her into a strong and courageous young lady, ready to embark a bright and prosperous future.  She would like to use her experience to help others.  After graduation, Logan plans to attend Wichita State University for a bachelor's degree in athletic training and eventually attend USMKC for a doctorate program in osteopathy.  Logan encourages those who are battling Lyme to be strong and never give up hope.  She wants them to know, "You aren't crazy.  You are not making the disease up, and it really does have a traumatic effect on people who have it. Something is seriously wrong, and it is not just a matter of taking a few pills to cure it.   Keep your faith in God strong, and you can overcome it with the help of a supportive family."  

Logan with her parents and siblings at her sister's wedding in 2014

RESOURCES

For more information about Lyme disease, you can read my blog article:
http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html

To find a Lyme literate doctor in your area, you can visit:
http://www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

Other Lyme resources:
http://www.lymediseaseassociation.org/

http://www.lymediseaseblog.com/

(the voices of Lyme) A voice of Hope: Nancy's Story

OUT OF THE SILENCE

"Let us then with confidence draw near to the throne of grace, that we may receive mercy and find grace to help in time of need."  Hebrews 4:16

Lyme disease is often referred to as the "invisible illness" and the "great imitator" because it is extremely difficult to detect and it mimics various other diseases/conditions. Many are silently suffering from this debilitating disease, unable to obtain adequate diagnostic testing or treatment.  Society at large is grossly uninformed about the widespread effects that Lyme disease is having on individual lives and their families.  It is my personal goal to be a "voice out of the silence" of pain and despair by raising awareness about Lyme.   I have had the opportunity to come into contact with some amazing women who have agreed speak up and share their own experiences for my "voices of Lyme" series.  I am profiling individual stories of daily challenges and triumphs with the disease.

When I first discovered that I likely had Lyme disease a few years ago, my daughter's AWANA leader at church approached my husband to discuss her own experience with the disease and how she conquered it through alternative healthcare.  Nancy's story was the first to offer me hope.

FACING THE UNKNOWN

"Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand."  Isaiah 40:10

In May of 2008, Nancy Sommerfeld was plagued with mysterious physical symptoms.  She could not pinpoint what exactly was going on; however, she knew that something was very wrong.  Nancy was having extreme fatigue, unusual heart symptoms, and insomnia.  She frequently woke up around 3 AM with a racing heart.  By late June, the symptoms persisted so Nancy made an appointment with her primary physician.  He discovered she was having irregular heart patterns and recommended that she take a stress test for her heart.   Nancy was diagnosed with high blood pressure, and her physician prescribed a medication to address her condition.   A week after taking the stress test, a nurse contacted Nancy and asked her if anyone in her family had ever "dropped dead from heart failure." The clinic then scheduled an appointment with a cardiologist.   At the cardiology appointment, the specialist examined Nancy, reviewed her test results, and declared that she had mildly high blood pressure.  He assured her that prescription medications would keep her condition under control.  Nancy described feeling sluggish so the cardiologist prescribed another medication.

As the summer went on, Nancy's condition continued to worsen.  By August, she was having unusual neurological symptoms, tremors in her hands, and strong adrenaline reactions to stimuli.  Her doctor assured her that she was fine and offered to prescribe something for anxiety, which she declined.   This was the first time Nancy had experienced these neurological and physiological responses.  She knew that she wasn't fine and that there had to be an answer.  "During my illness, I was constantly praying for insight into what was happening.  It was terrifying to have one's body react in such scary and strange ways and not know why."

FINDING HOPE

"What no eye has seen, nor ear heard, nor the heart of man imagined, what God has prepared for those who love him."  1 Corinthians 2:9

That September, Nancy did receive insight through consultation with a nutritionist who suggested that she may have Lyme disease.  Nancy did some research and saw that it made sense after reading what others had experienced with the disease.  Nancy did not recall having a tick bite or any symptoms typical of tick bites.  It never crossed her mind that her symptoms might be a result of Lyme disease.  She requested a Lyme test at her local clinic but both types came back negative.  When she asked for antibiotics to treat the condition, her doctor refused and offered anti-anxiety medication instead.   Again, Nancy turned down the medication, knowing it was not right for her.  A family physician did eventually agree to prescribe antibiotics for Lyme.   Nancy felt that the medicine helped a little; however, her symptoms continued to persist, and she was convinced that Lyme was the problem.

A friend from church suggested that Nancy try alternative measures to treat the disease.  The friend recommended a Field Control Therapy practitioner who had been successful in treating other cases of Lyme disease.  When Nancy contacted him to explained her symptoms, he agreed to squeeze her into his busy schedule and made an appointment for late September.  Nancy received some testing that revealed a presence of Lyme disease as well as two other Lyme co-infections.  She learned that the secondary infections could cause as many if not more debilitating health symptoms than Lyme.  Nancy discovered that the disease appeared to be in the advanced stages and was compromising her myelin sheath, an insulating layer that surrounds the brain, nerves, and spinal cord.  Nancy and her family were extremely relieved to finally have answers for what was going on with her health.  Nancy was very skeptical about Field Control Therapy when she first heard about it.  She was never criticized for using this venue of health care, though some found it more difficult to accept than others.  "It was only after months of being treated and feeling better than I ever had in my life that I realized how helpful Field Control Therapy could be."

REST FOR THE WEARY

"Come to me, all you who are weary and burdened, and I will give you rest.  Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls."  Matthew 11:28-29

Lyme had a tremendous impact on Nancy's energy level throughout the course of her illness and treatment.  That summer, Nancy spent most of her spare time sitting out on the front porch swing so she could rest her weary body.  Nancy could recall the difficulty she had maintaining her garden and keeping up on the housework and cooking.  It took up all of her energy.  Her husband, Bruce, did what he could to help with the children and housework.  In the fall, Nancy was taking some classes at the University of Wisconsin River Falls for her teaching certificate and Master's in Elementary Education.  Some nights, she barely had the strength to walk from the class to her car.   As Nancy was observing a classroom in St. Paul, she struggled to make it up the stairs to the classroom.  Somehow, God helped her to get through all of her classes.  Nancy attributes God's grace for her family's ability to function with a fair amount of normalcy despite the tremendous turmoil in her life.  Nancy's personal relationship with God offered her the supernatural rest she needed to be at peace.  "I felt God leading me all along, helping me cross paths with those who could help me.  I have always been somewhat afraid of not being able to cope if a debilitating illness or injury entered my life, and I felt as though God showed me through my Lyme episode that He was more powerful than any external circumstances that may have come my way."

BLESSINGS ALONG THE WAY


"But he said to me, 'My grace is sufficient for you, for my power is made perfect in weakness'."  2 Corinthians 12:9

Around the time Nancy was at her sickest, her mom was at the end stages of Alzheimer's and residing at a care facility in Hudson.  Nancy was the primary person responsible for her mom's care.  Nancy's low energy made visits to see her mom extremely difficult.  The staff members at the care facility were aware of her situation and did everything they could to help out.  That December, her mom's body shut down and she passed away a few days later.  Nancy felt blessed to be able to stay with her mom until the end.  "God was so sweet about the circumstances surrounding her passing.  It was as though He knew I was doing all I could do and He was pleased."

Nancy was so sick at her mom's funeral, she wasn't sure if she could get up the few stairs to the church service.  Thankfully, her condition improved the months following so that she could handle her mom's estate and continue to take care of her family.  Nancy's recovery period took about a year before she felt back to normal.  She felt God's presence working things out the entire time.  "God truly showed me that He is sufficient in all circumstances.  I had always thought that I couldn't afford to get sick because I was indispensable to my family, but God lovingly showed me that I needn't carry that heavy burden.  I needed to be incapable of doing many of the things I thought I needed to do for my family in order for God to teach me some important lessons that I couldn't have learned if I was healthy."

A VOICE OF HOPE

"Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, who satisfies you with good so that your youth is renewed like eagle's."  Psalm 103: 1-5

Nancy's faith played a central role in her daily struggles with Lyme disease.  She had already made it a habit to read her Bible and devotions late at night when the house was quiet.  Those intimate moments with God were especially important during her illness.  She could then lean on God for His strength as hers was completely gone.  Nancy sensed that He was always there and always faithful to provide all (but not more) that she needed at any given time.  Nancy has been able to use this experience to offer a "voice of hope" for those who are still in the battle with Lyme.  "Lyme disease can be a terrifying and lonely disease because sometimes well-meaning people really don't believe you have a serious health condition.  You need to cling to God for guidance and strength.  Trust that He is the ultimate Healer and knows exactly what is best for you, even when you feel like disagreeing with Him!  When I look back on my illness, I realize that God taught me things that I wouldn't have learned otherwise.  Nothing is wasted in God's eyes.  God will bring people into your life who can help so don't be afraid to reach out to others for answers and assistance.  I think of all of the people who contributed to helping me get better and I am so grateful for each one." 

RESOURCES

For more information about Lyme disease, read my blog:
http://dzehm.blogspot.com/2012/12/chronic-lyme-disease.html?spref=fb

Here is an excellent article that explains facts about Lyme disease and why it is so difficult to detect and treat:  http://articles.mercola.com/sites/articles/archive/2013/09/04/lyme-disease.aspx

The Essence of the Soul: Bringing Light to Memory Loss

"The Lord is the everlasting God, the Creator of the ends of the earth.  He does not faint or grow weary; his understanding is unsearchable.  He gives power to the faint, and to him who has no might he increases strength.  Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait on the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."  Isaiah 40:28-31

MEMORIES UNFOLD LIKE TREASURES

About a month ago, a family friend asked me to share some insights from my experiences working with individuals who had memory loss.  He was entering into a mentoring relationship with a man in the early stages of Alzheimer's and wanted to have a better understanding of what to expect.  Our conversation opened up a flood of memories.  Twenty-one years ago, I walked into the doors of the local nursing home and asked for a job as a Certified Nursing Assistant.  Eventually, I went to college for my Bachelors of Science in Social Work, and it made sense to continue working with the elderly.  For almost two decades, I spent my working hours alongside the needs of vulnerable seniors, sharing in their daily struggles and delighting in their joyful moments.  I saw a tremendous amount of joy, sorrow, hope, loss, wisdom, humility, and love.  My work brought a sense of fulfillment in making a difference as well as the heartache in observing the overwhelming losses that these courageous individuals and their families had to endure.

I worked at a handful of facilities over the years; however, some of my most treasured memories were at a memory care unit in the city.  When I took a position as their social worker, I knew I would face immense challenges on the large secured unit that provided care for individuals in all stages of memory loss, some expressing themselves through severe aggression and disruptive behavioral patterns.  Determined to do my best, I immersed myself in education about Alzheimer's disease, memory loss, and the best strategies in caring for this vulnerable and at-risk population.  In doing so, I unearthed an incredible treasure by discovering the key to finding the authentic person behind the disease as I unveiled the unique life experiences that shaped each individual personality and behavioral pattern.  It wasn't an easy job, and I had my share of struggles in the process; however, the reward was definitely worth it.  I was blessed with numerous memories of individuals who touched my life in a myriad of ways.  I couldn't even begin to share them all; however, I picked a few of my favorite stories of incredible encounters with extraordinary individuals.

COMMON GROUND:  SANDRA'S STORY

"Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, who satisfies you with good so that your youth is renewed like eagles."  Psalm 103:2-5

 Sandra was a sullen woman with a dual diagnosis of an unspecified form of dementia and a significant history of mental illness.  Upon completing Sandra's social history, I learned that she was somewhat of a celebrity in her day.   Sandra's career began as a soap opera actress for the radio, and she ran in circles with Hollywood's elite.  Sandra also won a handful of beauty pageants.  She was once devastatingly beautiful, and her husband, Ronald, adored her.  To Ronald, she was still his gorgeous bride whom he fell in love with so many years ago.  To the memory care staff, Sandra was a bitter woman, her days of fame seemingly long forgotten.  Once in a while, the diva in her would spill out in her fiery personality, but most of the time she seemed just plain angry and hateful. The exasperated caregivers showed me bruises and scratch marks on their arms, describing the hateful words she spat at them.  I made several futile attempts to get to know Sandra better; however, she made it clear that she despised me.  She would glare at me and sometimes stuck out her tongue when I smiled at her.  Then, in a miraculous moment everything changed.

At that time, I was working at a Christian facility that encouraged the staff to minister to the spiritual needs of the residents.  One afternoon, upon returning from a staff prayer group, I felt incredible warmth in my spirit.  As I stepped onto the memory care unit, I discovered Sandra just outside of her room, sobbing. I gently touched her shoulder and asked her, "Sandra, what's wrong?"  Then, the moment truth came out when she expressed how lonely and inadequate she felt.  I patiently listened to her and took a risk by asking her, "Sandra, do you know how much God loves you?"  I told Sandra about God's immeasurable love and prayed with her.  Sandra replied with tears spilling over, "That's the nicest thing anyone has ever said to me."  That day, Sandra and I somehow found a common ground in her anguish and the warmth of God's Spirit in my heart.  That was the start of a new relationship between us.  Every week, I set aside time to visit with Sandra, read Bible verses, and pray with her.  I was rewarded with the joy of her smiles and the light in her eyes during those precious moments.  Although Sandra continued to be aggressive with staff, and she had periodic angry outbursts, I saw a change in her. I was privileged to get to know the real Sandra who let down her guard and revealed the sad and frightened spirit behind her bitterness and anger.

 Whenever Sandra's husband, Ronald, visited the memory care unit, Sandra's eyes lit up and her face radiated with love.  When they were apart, she grieved his absence, frequently telling me in tears how much she missed him.  It was obvious how much they loved each other.  About a month before Sandra entered into eternity, the activity staff  invited several spouses to share in a romantic Valentine's dinner at the facility.  They sent out special invitations and decorated the lower level for the event.  Each couple had their own private table with a candlelight dinner.  On the day of the event, we helped recreate Sandra's youth.  The activity staff gave the beautician a picture of Sandra as a young actress and asked the beautician to fix her hair with the same style.  We assisted her in dressing up in her finest clothes and painted her nails red.  I helped her with her makeup, and she picked out some elegant costume jewelry to set off her look.  That evening, we took a photograph of the happy couple.  The joy and happiness they both experienced warmed my heart.  I felt honored to have a small part in this memorable moment for two very special people.

THE LIGHT:  GEORGE'S STORY

"I will turn the darkness before them into light, the rough places into level ground.  These are the things I do, and I will not forsake them."  Psalm 42:16

Every day, George sat outside my office with a weary smile, his sad gray eyes gazing at me.  George was a kind and gentle man.  His personality was unassuming, and he did not say much. Not long after George's arrival, the facility decided to separate the large unit into two smaller memory care units.  On the day we shut the doors to separate the units, George anxiously looked around him like a caged bird seeking a way out. Later that day, George cried out, "I'm sorry honey, I have to do this!" He then shot out of his wheelchair and ran into the elevator just before the door closed.  Determined to get away, George made his way out the front door and headed towards the parking lot.  Fortunately, another staff member and I were able to safely assist George back into the facility.  He later told me that when he saw the doors shut, he felt like he was locked up in a prison.  George had to get out of there, and he was heading home.  George's wife, Lillian, couldn't care for him anymore and the memory care unit was his only option at the time.

George was in the moderate stages of Alzheimer's and physically compromised as well.   I asked Lillian to bring in some familiar items from home that could assist George in feeling more comfortable.  She brought in a picture of George from chef school.  He and his fellow students proudly wore their chef hats with mischievous grins.  George enjoyed sharing stories about his work as a chef.  I started spending extra time with George to help him adjust to his surroundings, offering him opportunities to step out of the memory care unit for some additional freedom.  We sometimes attended cooking classes together and sampled the food.  Although the cooking classes were enjoyable, our favorite times together were our weekly "dates" outside the facility.  Before we headed out, I would stop by the break room for a Little Debbie snack and a can of root beer for us to split.  We sat outside at the facility park, sipping our cups of root beer and eating our dessert cakes in comforting silence. It was summertime.  The air was fresh, and the park was beautiful. A small waterfall bubbled softly and sunlight poured over us like a beam of light to wash away the darkened shadows.  Those moments were serene, and George's gray eyes glowed with relaxed pleasure.  There was something about simply engaging in normal everyday activities that brought contentment to his spirit.

George wasn't with us long.  One morning, I stopped by his room for a visit and found him in bed, his eyes glazed over and distant.  His breathing was shallow as though it took a tremendous amount of effort for each breath.  My heart felt heavy as I realized that the end was near.  I sat with him, gently holding his hand and praying.   I experienced a sense of peace knowing he would soon experience the glorious freedom of eternity.  Someday, we would meet again on the streets of gold, and George would be young and free, full of life like the confident young chef in his picture.

THE ESSENCE OF THE SOUL:  MARCUS'S STORY

"Though our outer self is wasting away, our inner self is being renewed day by day.  For this light momentary affliction is preparing us for an eternal weigh of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen.  For the things that are seen are transient, but the things that are unseen are eternal."  2 Corinthians 4:16-18

Marcus was in the late stages of Alzheimer's.  From the day I began working at the memory care unit, his timid presence was nearby as he silently took in his surroundings.  Every day, Marcus's devoted wife, Virginia came and sat with him. She loved him dearly, and he was her life.  Virginia clung to the hope that Marcus would get better so that he could return home where he belonged.  The nursing staff shook their heads sadly as they overheard her telling her husband, "Now Marcus, you have to get better and start walking so you can come back home!"  As his Alzheimer's progressed, Marcus eventually lost the ability to verbalize, smile, lift up his head, and swallow.  When Marcus was in his final days of his life, Virginia stayed by his side begging him to live and pleading with nurses.  Although the prognosis gave him hours, a day or two at the most, Marcus hung on for more than a week.  Finally, Marcus's geriatric nurse practitioner sat down with Virginia and had a very compassionate but frank conversation with her about her husband's condition. The nurse practitioner explained to Virginia that Marcus was holding on to the thin thread of his life for her sake.  When Virginia was finally ready to say goodbye to her beloved husband, he passed away a few minutes later.

Marcus may not have been able to verbalize or place exactly who his wife was; however, he truly loved her and recognized her as someone very significant to him.  We can lose our physical health, our memories, and our ability to speak; yet, we don't lose the essence of who we are.  The soul beautifully woven by our Creator remains intact, held in the deep recesses of the heart.  The soul sees, the soul knows, and the soul remembers.

UNDERSTANDING MEMORY LOSS

"Can a woman forget her nursing child, that she should have no compassion on the son of her womb?  Even these may forget, yet I will not forget you.  Behold, I have engraved you on the palms of my hands."  Isaiah 49:15-16a

The term dementia is most often used when referring to memory loss.  Dementia is not a disease but an umbrella term describing a group of symptoms caused by a variety of diseases or conditions such as Parkinson's disease, Lewy Body dementia, Vascular dementia, Picks disease, and Alzheimer's disease.  Alzheimer's is the most common form of dementia.  It is a progressive disease believed to be caused by plaques and tangles that attack and destroy brain cells.  Individuals with Alzheimer's disease first lose their short-term memory.  They may have trouble coming up with the words for the names of everyday objects.  As they begin to realize something isn't right, they can have the tendency to withdraw and isolate themselves.  Family members may notice sudden personality changes or mood swings. Individuals in the early stages of Alzheimer's and other dementia-related conditions often are able to hide or compensate for their memory loss; however, as the disease progresses it becomes increasingly difficult to do so.  They often revert back to earlier stages in their lives and may not recognize family members or loved ones.  Faces are familiar to them, yet they are unable to place who their loved ones are.  The individual with Alzheimer's sometimes will remember his/her spouse as the person he/she first married and talk about their young children/babies.  At some point, they may forget that they were ever married or had children. When they relive their younger years, both delightful and terrifying memories can resurface.  As family members and caregivers, it is critical we anticipate what the person with memory loss might be experiencing so that we are better equipped to help them navigate through each day with compassion and patience.  When we let go of our expectations, we are able to momentarily reach the heart and soul of the person.  In seeking the essence of who they are and the source of their daily struggles, we are able to more successfully bring joy into the person's day, moment by moment.

WHERE THE HEART IS

The term, "home is where the heart is" is central to the spirit as memories fade and surroundings become unfamiliar.  When the individual with Alzheimer's asks to go home, they aren't necessarily looking for an actual place but a feeling of safety and security.  When I trained staff and families on caring for individuals with Alzheimer's disease, I would remind them that our job was to bring "home" to the person.  "Home" may be a steaming cup of coffee with a sweet pastry, a stroll in the garden, the softness of a favorite blanket, a song that brings back cherished memories, or quietly sitting and holding hands.  One woman may find "home" in baking a homemade apple pie, while another may find "home" in cuddling with a baby or petting a dog.  Although we are unable to change the circumstances and reverse the progression of the disease, we can make the daily choice to live for each moment understanding that each behavioral symptom the individual expresses is a way of communicating an unmet need.  We create a feeling of "home" when we patiently meet them where they are in each moment.  The daily struggles with the disease can be daunting and overwhelming, yet we are left with those moments, and they are what count.

Family was the center of my Grandma June's life.  She loved spending time with her grandchildren and other family members.  Although my grandma did not experience memory loss, she spent her final days at a long-term care facility in rural Kansas.  My last memory of Grandma June was her sitting with me, holding my hand, and telling me several times, "I love you."  

RESOURCES

The information in this article was based on my own personal experiences as a caregiver for countless individuals with Alzheimer's and other dementia-related conditions as well as the information I taught in training seminars for staff and families.  I was also a periodic guest speaker for the Alzheimer's Association.  The stories I have shared took place several years ago; however, I changed the names in order to protect the privacy of each individual.

For more information about Alzheimer's and dementia as well as caring for individuals, you can check out Jolene Brackey's website.  I highly recommend her book, Creating Moments of Joy.

http://enhancedmoments.com/

You can also visit the Alzheimer's Association's website to learn more about the disease and find out what resources/help are available to you and your loved one.

http://www.alz.org/

For more stories about working with memory care, you can read my blog:
http://dzehm2.blogspot.com/2017/04/the-memory-seeker.html

Kelly's Hope Part Three: Bridging the Gap

                                            Kelly Peterson  1961-2013

"My heart and flesh may fail, but God is the strength of my heart and portion forever."  Psalm 73:26

A DETOUR AND A MISSION

Kelly Peterson was a bold yet humble Christian woman who spent her life serving others and living in obedience to God's perfect plan.   Kelly's journey took a detour for the last 3 years of her life as she battled cancer, choosing alternative therapies over conventional medicine.  She saw her cancer as a part of a greater plan directed by God and used her experience to minister to the needs of others battling with cancer and other chronic illnesses.   At one point, Kelly had shared with her family that she felt she could have been more open to asking for and receiving help from others.  She initially didn't see the benefit of openly sharing her cancer story; however, as her cancer progressed, Kelly and her family decided to inform the public about her situation.  Kelly received a considerable amount of encouragement and support from family, friends, and the church.  In the spring of 2013, Kelly's family and friends coordinated a benefit to help pay for her medical expenses.  Local businesses and individuals from the community also provided a tremendous amount of financial support.  She was amazed and overwhelmed by the emotional and monetary support provided by so many people.

Kelly saw a need to educate others on how to come alongside individuals suffering from cancer and chronic illness.  She had an incredible support system throughout her cancer journey; however, she also received overwhelming scorn and judgment from those who disagreed with her decision to use alternative healthcare to treat her cancer.  She also witnessed the loneliness and isolation of others with similar experiences.  Instead of feeling sorry for herself or holding on to any resentment towards others, Kelly let it go to God and trusted His guidance to use her situation as an opportunity to help others.

TAKING ACTON:  NOTES FOR KELLY'S BOOK

"What good is it, my brothers, if someone says he has faith but does not have works?  Can that faith save him?  If a brother or sister is poorly clothed and lacking in daily food, and one of you says to them, 'Go in peace, be warmed, and filled,' without giving them the things needed for the body what good is that?  So also faith by itself, if it does not have works, is dead."  James 2: 14-17.

Kelly decided to use her insights to take action and instigate change.  In the last 2 years of her life, she took notes for a book she planned to one day write.  Her goal was to guide individuals with family/friends who have cancer or a chronic illness and use alternative therapies to treat their conditions.  She also wanted to educate the church body on how to better assist and care for these individuals.  Kelly was hesitant to share her own story in the book as she wanted to give God all the glory. Some of the questions that Kelly hoped to answer in her book included the following:  "How could family and friends have helped you"? "What did people do that was helpful and an encouragement to you?"; "What were some of the things that were not helpful or were discouraging to you"?; "How did you pay for your treatments/protocols?"; and "Were there any mistakes you felt you made?"

 Although Kelly did not have the opportunity to complete her book, she did put together a comprehensive list of the insights that she discovered during her journey.  Kelly's husband, Jim, recently found her notes and gave them to her daughter, Cori, to review and organize.  It has been their strong desire and goal to share these notes with the public in order to raise awareness about individual needs and to improve the quality of life for those facing these struggles.  The following information was derived directly from Kelly's notes and personal observations.    

HOW TO HELP AND ENCOURAGE THOSE WITH CANCER/CHRONIC ILLNESS

Kelly was personally encouraged by the various acts of kindness provided by family, friends, and individuals from her church.  She appreciated it when they made themselves available to listen to her and when they asked her genuine heartfelt questions about what she was going through and about her alternative therapies.  She enjoyed spending quality time with those who truly cared about her well-being.  Kelly's daughter, Cori, recalled Kelly especially appreciating it when people sent her flowers, notes, and cards for encouragement; provided her with pedicures and massages; cleaned her house and did specific chores she was unable to do; offered her rides for appointments; coordinated meals for Kelly and her family; and put together a worship playlist for her iPod to refresh her heart, soul, and mind.  Kelly wrote down this specific list of things people could do to help those with cancer/chronic illness:

• Call periodically and ask them how they are doing
• Pray with them in person and on the phone
• Send cards with notes and prayers of encouragement
• Send unexpected flowers to brighten their day
• Show them genuine interest in their treatments/protocols by listening and asking SPECIFIC questions
• Offer to do some research online for them
• Read some of the books they are reading with them
• Go to appointments with them and/or drive them there if they are not physically able to drive on their own
• If you live near the person, ask them, "Would it be helpful if I texted you before I run errands so that I can pick something up for you?"
• If they are housebound, offer to run errands, grocery shop, take their kids shopping, etc.
• Offer to do some chores and clean for them so they can rest, i.e. vacuum, laundry, cook meals, clean bathrooms/kitchen, etc.
• Offer to help "declutter" their homes, work on the computer for them, or assist with other household tasks
• Offer to take their kids out for the day or weekend-- the situation can be very stressful and upsetting for the children
• Offer to do seasonal outdoor chores, i.e. plant flowers, weed garden, mow lawn, shovel driveway, rake leaves, wash windows, clean gutters, etc.
• Put together a support team for them
• Organize a phone chain where people are calling regularly to check on them
• Coordinate the regular delivery of meals for them and their family (ask about specific diet restrictions) 
• Coordinate a schedule of individuals to help with daily chores/house cleaning, rides to appointments, and other needs
• Assist in putting together a schedule of daily protocols for alternative therapies
• Get them a massage (great for the lymph system) or offer to take them out to see a comedy show (laughter is good medicine!)
• If you live in the same household, adopt a healthier/similar diet 
• Help reduce any unnecessary stress in their lives, i.e. relational/family, work-related, household clutter, etc.
• Sympathize and be understanding of where they may be at or may be feeling (mourn with those who mourn)
• While it IS good to ask them how they are doing, don't let that be all you ask them
• Tenderly, tactfully, and timely speak hope into their hearts and minds
• Rejoice with them in their small victories
• Remember that they are sick and trying to fight a disease/condition, even if they may not LOOK like it

WHAT THE LOCAL CHURCH CAN DO TO HELP

The church was a significant part of Kelly's support system; however, she observed that individuals in the church sometimes were unaware or unsure how to assist those with cancer/chronic illness.  The following is a list of ways Kelly believed the church could come along side these individuals:

• Arrange for elders in the church to pray with them and anoint them with oil
• Coordinate individuals to call and/or come to their homes to pray with them on a consistent basis
• Call and check on them regularly
• Post specific needs on a website or email
• Coordinate financial assistance, offerings, donations, etc.
• If they are unable to physically leave their homes, offer to bring "church" to them by singing worship songs with them, studying the Bible together, etc., as they may be yearning for the fellowship and spiritual connection that occurs in corporate worship

HOW TO ASSIST INDIVIDUALS FINANCIALLY

Kelly felt extremely blessed by the monetary support of those who assisted her in paying for  alternative therapies and put together a fundraiser to help pay for her medical expenses.  Both conventional medicine and alternative healthcare can become financially taxing for individuals with cancer/chronic illness, especially when they are no longer able to work or have lost their jobs because of their physical conditions.  Insurance companies will not pay for alternative healthcare treatments and therapies.  Supplements can become very expensive and may cost up to thousands of dollars each month.   Cancer/chronically ill patients are often put on special diets requiring certain healthy and/or organic foods.  These foods can become costly as well, especially when the patients are required to juice several times a day with organic fruits and vegetables.   Kelly noted the following ways to financially assist these individuals:

• Coordinate a fundraiser to offset medical costs, treatments, and therapies
• Ask what therapies they are doing and if you can pick something up or help pay for it
• Offer to pay for one supplement each month
• Offer to buy a piece of at-home medical equipment or device/treatment
• Deliver organic groceries to them 
• Offer to purchase a book they have expressed a desire to read in order to learn more about their disease or condition

WHAT IS NOT BENEFICIAL OR HELPFUL

Kelly was discouraged by friends who disagreed with her decision to decline conventional treatment, and some of them reduced/stopped contact and involvement in her life.  She would have liked them to ask more questions about what she was going through; however, they seemed more concerned about what they thought was best for her cancer.  It was also very stressful for Kelly when a few individuals who forgot that she was sick and weak had demanded too much of her time which compiled unnecessary chaos in her life.  Kelly also observed the relational struggles that other individuals experienced in their own daily battles, and she wanted to tactfully bring these issues to light.  These were the notes she wrote about what NOT to say and do:

• Telling them that the treatments/therapies they are doing are "snake oil" or "from Satan"
• Telling them, "If it were me, I would be at the doctor"
• Telling them, "Please let me know how I can help"-- while you may think this is helpful, it is not because #1) It is very hard for anyone to ask for help and #2) They have so much going on they do not have the time or energy to think of ways you can help and sometimes they are just trying to make it through the day-- Instead ask and offer to help with very specific things, i.e. "Can I bring you dinner Tuesday night?" "Can I take your kids once a week?"  "Can I mow your lawn?", "Can I help you do some research?", etc.
• Telling them you want to come over and pray with them and then not follow through-- it may seem like a minor thing to you; however, they can be experiencing loneliness and isolation, and personal fellowship/prayer is very significant to them
• Don't question if they really have the illness or not
• When they have good news to share with you about any progress no matter how small, don't reiterate your disagreement with their healthcare choices, ignore them, seem unresponsive, or act like it isn't a big deal 
• Don't go to your primary physician and tell them about your friend with cancer/chronic illness and then tell that person what your physician says they should do as the doctor does not know the details about the situation
• Don't talk negatively about them behind their backs, stating what you would be doing in their situation
• Don't give them excessive advice unless asked, just LISTEN to them
• Don't avoid the "cancer" subject unless the cancer patient asks you to
• Don't tell them of all the people you know who have cancer or have died from cancer--this is NOT helpful and doesn't show that you are interested in them or what you are going through
• Don't tell them they are strong and are a fighter because God is the only one who is strong for them and the one who is fighting for them-- They cannot do this alone!

BRIDGING THE GAP

"Now if anyone builds on the foundation with gold, silver, precious stones, wood, hay, straw--each one's work will become manifest, for the Day will disclose it, because it will be revealed by fire, and the fire will test what sort of work each one has done."  1 Corinthians 3:13

Kelly's mission was to educate and enlighten the public about the individual needs and struggles of those with cancer/chronic illness.  She did not want to criticize or tear down those who have made mistakes in handling these situations.   She believed strongly in God's grace and His mercies that are new each morning.  If you have engaged in insensitive or unhelpful comments towards others with cancer/chronic illness, Kelly would not have wanted you to dwell on it or blame yourself.  She would have encouraged you to bring it to God and to learn from the situation.   God's grace is enough to bridge the gap and heal relationships.  Kelly's mission was to share God's incredible power to heal, forgive, and bring people together.  My prayer is that this information will enlighten and better equip many in order to encourage them to take the necessary steps to come alongside and help someone in need.  That is what family, friendship, and the church is about.

"And let us consider how to stir up one another to love and good works, not neglecting to meet together, as is the habit of some, but encouraging one another, and all the more as you see the Day drawing near."  Hebrews 10:24-25


For more information about Kelly's life, legacy, and cancer journey--go to Kelly's Hope Part 1 & 2:

http://dzehm.blogspot.com/2014/05/kellys-hope-womans-life-legacy-and.html


http://dzehm.blogspot.com/2014/06/kellys-hope-part-two-building-on-legacy.html

Kelly's Hope Part Two: Building on a Legacy

                                                      Kelly and her daughter, Cori
                       

THE "GOOD FIGHT"

"I have fought the good fight, I have finished the race, I have kept the faith.  Henceforth there is laid up for me the crown of righteousness, which the Lord, the righteous judge will award me on that Day, and not only to me but to all who have loved his appearing."  2 Timothy 4:7-9

Kelly Peterson discovered that she had breast cancer in July of 2010.  After her diagnosis, Kelly and her husband, Jim, spent a considerable amount of time in prayer, and she carefully researched her options.  They made the informed decision to decline conventional medicine and utilize holistic cancer therapies.   Kelly's children, and her sister, Lori, were completely supportive of this decision. Throughout her cancer journey, Kelly brought all things before God in prayer and acted out of complete obedience to God's will in her life.    For the first two years, Kelly felt great and was healthier than she had been for a long time.  In the spring of 2012, multiple unforeseen stresses compounded her life, and she began to have a change in her condition.  For the next year and a half, Kelly experienced a tremendous amount of pain and suffering as she battled Stage 4 Cancer; however, she chose not to have a "victim" mindset.  She remained proactive and strong in her faith.  When Kelly's cancer progressed and her pain and weakness intensified, she held fast to her faith and filled her mind with the truth of God's word.  Kelly and her family did not express regret or question her decision to decline conventional medicine for holistic therapies.  They accepted God's sovereignty in her daily struggles.  Kelly "fought the good fight" and was triumphant in her faith when she entered into eternity on October 9, 2013.

THE RENEWAL PATH

"So we do not lose heart.  Though our outer self is wasting away, our inner self is being renewed day by day.  For this light momentary affliction is preparing us for an eternal weight of glory beyond all comparison, as we look not to the things that are seen but the things that are unseen.  For the things that are seen are transient, but the things that are unseen are eternal."  2 Corinthians 4:16-18

As Kelly faced a cancer diagnosis, she was given three options: surgery, chemotherapy, and radiation.  Kelly and her husband spent a considerable amount of time in prayer and doing extensive research, and they did not feel that these options were the right choice for her.  After making this decision, Kelly encountered significant scorn and opposition from doctors and other practitioners in the medical community.  She believed their opposition was a result of inadequate education and knowledge about alternative approaches to treating cancer due to their limited access to information and research about holistic cancer therapies.  Kelly felt that the conventional practitioners could only offer the options that they were aware of.  When Kelly researched other options, she found thousands of stories and testimonies of cancer survivors who successfully conquered the disease naturally, and she prayerfully decided what steps she would take to fight her cancer holistically. She was certain that this was the right path for her.

Kelly used various tests to monitor the progression of her cancer.  She received a R.G.C.C. Blood Analysis Test through a lab in Greece that provides testing for personalized blood and gnome chemo-sensitivity/chemo-resistance testing.  Kelly tracked her breast cancer with thermograpy, a non-radiation and alternative method of detecting and tracking cancer.  Thermography is believed to be a safer alternative to mammograms and CT/Pet scans that emit radiation. Kelly also tracked the progression of her cancer by routinely sending urine samples for testing to the Navarro Medical Clinic in Palatine, IL.  At the Oasis of Hope Cancer Center in Irvine, California, Kelly received cancer profile testing to determine what treatments were needed for her specific cancer type.  Oasis of Hope also offers an ONCOblot Test to detect early forms of cancer by identifying the ENOX2 protein, which only exists on the surface of malignant cancer cells.  Kelly chose holistic cancer therapies to support her body and its elimination of cancer rather than destroying both good and bad cells in the body while disrupting the body's natural ability to fight disease.  Over a period of three years, Kelly utilized various treatments that have been known to aid in the process of reversing cancer.  They included:

• Hyperbaric Oxygen Chamber
• Ozone Therapy
• Vitamin C IV's
• Far Infared Thearpy with a SOQ1 Bed and Chi Machine  
• Sauna therapy to raise the cell and body temperature
• Oil Pulling Therapy
• Chiropractic Care
• Massage and Craniosacral Therapy
• Cold Laser Therapy
• Light Beam Generator
• Low Dose, Insulin Potentiated Chemotherapy
• Nutritional Therapy, consulting with Nutritionist, Karen Hurd
• Quality and Trustworthy Supplements
• Juicing Raw Fruits and Vegetables with a Champion Juicer
• Gersen Diet
• Coffee Enemas up to three times daily
• Essiac Tea
• Chaga Tea
• Holistic Dentistry to safely remove amalgams and root canals
• Field Control Therapy

Last summer, Kelly participated in a 65 hour session of Far Infared Therapy with a SOQ1 Bed in Northern Minnesota.  She later purchased her own SOQ1 Bed to use at home.  She experienced enormous beneficial effects from using this machine; however, she was unable to find the time or physical comfort to utilize the equipment the way she needed for her type of cancer.  In addition to using the latest holistic cancer treatments and other healthcare strategies, Kelly relied heavily on the Bible and God's word to guide her.  Her faith was a critical part of her daily battle with breast cancer.  She pursued physical healing through personal prayer and Biblical meditation/devotions.  She attended prayer and healing meetings in the Twin Cities and sought prayer for healing when visiting churches in California.  Kelly maintained the mindset that God wanted to use her no matter what she was going through.  Although it didn't seem to make sense to her, she believed that God seemed to use her the most at her lowest and weakest moments.  When Kelly was receiving cancer treatments at Oasis of Hope, she looked for opportunities to speak life and the hope of Jesus into those around her who were going through similar journeys with cancer.

               "Faithworks 2013" volunteers from Faith Community Church put together a "Healing Room" for Kelly's SOQ1 Bed 

BUILDING ON A LEGACY

"But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us.  We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed; always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies. "  2 Corinthians 4:7-11

Kelly was bold in her faith and was very open about sharing the knowledge she learned from her hours of research about cancer and natural treatments.  She soon came to realize that people were not open and accepting of her wellness path as they showed little interest or respect for the knowledge and resources she gained through her research about treating cancer holistically.  Kelly did not want to come off as pushy, so she backed off and shared only when individuals showed interest in holistic health or asked her questions about her cancer treatments.  Over time, Kelly did notice that there was a growing acceptance for holistic health as more people discovered the value of this avenue of health care.   She provided resources for those who expressed a desire to learn more.  Kelly also prayed with individuals, listened to their stories, and walked with those facing similar struggles.

Kelly trusted in God's strength above her own, and she knew that God would never abandon or leave His children to suffer alone.  She described cancer and chronic illness as a mental battle in which one should continually fill their minds with the truth of God's word, the source of ultimate hope, healing, provision, and deliverance.  With God's forgiveness, restoration, and healing power, Kelly was more fully equipped to take action and face her situation head on.  Kelly was an encouragement for those battling cancer and chronic health problems.  She advised others to be strong advocates for their own health by asking questions, seeking preventative care, and addressing the root cause of their health concerns.  She knew firsthand the advantage of being proactive with doing the research and trusting God's guidance.   Kelly encouraged cancer warriors to find strength in God's promises as they moved past their initial fears and stepped forward in their personal journeys.  She saw cancer as a serious condition; however, refused to look at it as a "death sentence." No one, including doctors or cancer specialists, have authority over a person's life.  She would have encouraged individuals to take at least a week to do some serious prayer and research before making a hasty decision about getting rid of their cancer.  She believed in an individual's right to choose their own health care, whether they chose conventional or alternative approaches.   She advised others to put their trust and hope in Jesus Christ first, not conventional medicine or alternative therapies/holistic health, as neither venue of health care carries a guarantee of saving lives.

Kelly believed that the human body works as one unit and everything is interconnected.  A critical part of this process includes our thoughts, emotions, and even our sins, which can take a physical toll on our bodies.  During Kelly's cancer journey, she reconciled all these things in her life as she allowed God to heal her damaged emotions and lead her to the path of forgiveness.  She found that the healing of her heart (emotions/soul) and head (beliefs/thoughts) were just as important to her overall health as addressing her physical wellness.  She shared with others that Jesus Christ is the only one who has the power and authority to provide physical and emotional healing and encouraged them to surrender their lives to Christ.  Her experiences and struggles built a foundation for the legacy of a woman who loved God above all things and lived her life fully for Him.

                                           Jake, Cori, and Ellie Pierson plan to keep Kelly's legacy alive 

THE LEGACY LIVES ON

"And these words that I command you today shall be on your heart.  You shall teach them diligently to your children, and shall talk of them when you sit in your house, and when you walk by the way, and when you lie down, and when you rise."  Deuteronomy 6:6-7

Kelly's experience battling breast cancer has transformed her family's perception of life, faith, and healthcare.  Her daughter, Cori, continues to wrestle with God regarding the loss of her courageous and bold mother, yet she has accepted God's sovereignty in His decision to take her mom home to heaven.  "God and I are working through some tough questions and a broken heart, but I know He is big enough to handle these things and He loves me deeply.  He has the power to work in ways I do not understand.  When I imagine Mom's eternal body made new and whole again, where she can raise both arms to praise her one true Savior and King, I feel so happy for her." 

Cori chooses to focus on the positive aspects of her mom's experience with cancer. "One of the biggest blessings from my Mom's cancer journey is that I see how it has totally changed the health trajectory for me, my husband, our future family, and my extended family.  We will never be the same because of my mom getting cancer and the path she chose!  Because of Mom's research and study in so many different health related strategies, we have also learned and educated ourselves in so many ways."  

Kelly's holistic cancer research revealed the necessity to maintain the environment of the body at a level in which cancer cells are less likely to reproduce.  For example, cancer cells thrive and grow in a low oxygen environment, therefore elevated oxygen levels in the body can prevent the cells from multiplying.  An individual's risk for cancer will decrease with an alkaline ph balance.  Breast cancer is directly linked to low/acidic ph levels in the body.  The risk for cancer may also be reduced with eliminating endocrine disruptions from fragrances, perfumes, sunscreen, etc., and removing sugar from the diet as cancer cells thrive on sugar.    Kelly's family believes in using alternative medicine and therapies to eliminate harmful toxins stored in organs, tissues, and cells as well as boost the immune system and its functioning.  It is essential to support detoxifying organs with proper nutrition and supplements as well as ensure the nervous system is functioning at optimal levels to communicate with all organs of the body.  They strive to find out the root cause when a health problem arises rather than treat the symptoms with prescription medications.

Cori and her husband, Jake, have made it a point to educate themselves about all health-related aspects of their lives.  They have made several lifestyle changes as a result of their growing knowledge about holistic living.  They have changed their diet as well as how they grocery shop and cook.   The Pierson family has eliminated all processed foods as well as limit sugar, gluten, and liquid dairy.  They purchase organic foods and use glass kitchenware instead of plastic.  Jake and Cori have eliminated all household products with fragrances and chemicals.  They use safer alternatives for cleaning supplies, laundry detergent, medicine/supplements, hygiene products, lotions, sun screen, and bug spray.  Cori has moved all electrical items in the bedroom as far away from the bed as possible because they emit electromagnetic frequencies (emfs).  Jake and Cori have purchased cell phone memons for further protection from emfs.  They also seek other options for preventative tests and screening as an alternative to tests that emit radiation.   The Piersons schedule weekly chiropractic care appointments for healthy spines and enhanced communication between organs and the nervous system.  They have removed all metal products such as amalgam fillings from their teeth.  They take supplements/natural remedies and use oil pulling therapy on a regular basis for preventative care and treating sickness.  Cori receives restorative healthcare through Field Control Therapy, and she used natural drug-free childbirth when she delivered her daughter, Ellie.    "It has been a slow ongoing lifestyle change for the last three to four years, and it will continue for us.  We approach our health from a preventative stance and search to address the causes of our symptoms, rather than waiting until we are sick and only treating the symptoms."

Kelly's daughter and family strive to keep her mission and legacy alive by sharing the hope of Jesus Christ as well as important facts about the critical functions of the human body and the healing benefits of preventative healthcare.  This legacy will continue to build as future generations have the opportunity to build their lives on the hope found in God's word and faith in Jesus as well as the knowledge to take care of the bodies God designed for His purpose and glory.

"Do you not know that your body is a temple of the Holy Spirit within you whom you have from God?  You are not your own, for you were bought with a price.  So glorify God with your body."  1 Corinthians 6:19


RESOURCES

Kelly spent hours researching cancer treatment and holistic health, using resources from books and the internet.  She recommended reading these books for information about cancer and what options are available:

Cancer: Step Outside the Box, Ty Bollinger:   http://www.amazon.com/Cancer-Outside-Ty-M-Bollinger/dp/0978806506

Cancer Conqueror, Greg Anderson:  http://www.amazon.com/The-Cancer-Conqueror-Incredible-Wellness/dp/0836224159

Here are other websites and resources that Kelly utilized in her journey with breast cancer and holistic health:

http://www.cancertutor.com/

http://www.oasisofhope.com/

These are some of the tests that Kelly used to track the progression of her cancer:

http://cancercenterforhope.com/tests/rgcc-blood-analysis/

http://www.navarromedicalclinic.com/

For more information about Field Control Therapy and Quality Nutrition:

http://www.yurkovsky.com/

https://www.facebook.com/FlowingRiversAcupuncture

http://www.karenhurd.com/

Kelly's Hope: A Woman's Life, Legacy, and Victory in Christ

                                Kelly at age 50 on a mission trip to Ethiopia for Compassion Ministries

A FRIEND, ROLE MODEL, AND HERO 

Two and a half years ago, I was going through a terrifying experience with my health.  I discovered that I had chronic Lyme disease, and I started taking antibiotics which only worsened my condition. My doctor recommended I seek help through either a "Lyme literate" doctor or an alternative health care practitioner that specializes in treating Lyme disease.  I was unable to get in to see anyone right away because there was a high demand for these practitioners in my region.  There was a one-year waiting list to get into the alternative practitioner my doctor recommended, and I felt like my situation was hopeless.  Shortly after that, the mom of one of my previous Awana students called me and shared that she had cancer but was feeling great because of the alternative therapies she was doing.  She came over the next day to see if I needed any help and gave me some supplements to try.  A few weeks later, she called me to tell me that she had scheduled an initial appointment with the alternative healthcare provider I was on a waiting list to see.  She prayed about it and felt that God was leading her to give me her appointment.  The following week, I was evaluated by the practitioner, and I was eventually able to receive the treatments I needed.  I was absolutely stunned that God made a way when the situation seemed impossible to me.  Not only did this incredible woman sacrifice her well-being and her appointment to help me, she offered her friendship, mentorship, and support.

I was very appreciative to have a friend who was willing to walk through this journey together with compassion and understanding.  My friend called me regularly to find out how I was doing.  She offered her support and shared her own struggles.  We both shared prayer requests and were committed to pray for each other.   I always looked forward to her phone calls.  They lifted up my spirits and gave me hope.  She taught me about taking care of my body, researching/using discernment with choosing alternative healthcare, and trusting God in all things.   Her example encouraged me to be brave, to lean on Christ's strength, to live more fully for God's glory, and to reach out to others in need.  She inspired me to start blogging again and to use my experiences as a testimony for others.  As her condition began to decline about a year and a half ago, I observed how she clung to God's word and trusted in His hope.  Her faith in God became stronger as she approached the last months and days of her life.  I was in awe of her strength-- strength that wasn't her own but came from God.  Her example taught me about living with hope and about God's love that surpasses life and death.

Recently, my 14-year-old daughter wrote a school essay about her hero.  She wrote about the woman she believed had saved her mom's life.  That woman was Kelly Peterson, a dear friend and sister in Christ who battled cancer victoriously and was fully healed the moment she entered eternity on October 9, 2013.  

THE LIFE AND LEGACY OF A WOMAN OF FAITH  

"It is the Lord who goes before you.  He will be with you; he will not leave you or forsake you.  Do not fear or be dismayed."  Deuteronomy 31:8  (Kelly's life verse)

Humble, selfless, compassionate, hospitable, bold, and full of life are a few of the many characteristics that Kelly Peterson exuded as she embraced living with confidence and joy.  Kelly was very committed to her husband, Jim, and her family.  She was extremely involved in the lives of her three children, Cori, Trevor, and Caleb.  Kelly dedicated her life to help those in need.   She opened her home to accommodate traveling missionaries, homeless teens, sick family members, and she sheltered Somalian refuges. The Peterson family enjoyed using their back yard and swimming pool for social gatherings and church baptisms.  Kelly had a servant's heart and always put others before herself.   Kelly was passionate about helping teenagers, and worked with troubled youth at the Stillwater, MN, school district.  She was actively involved in pro-life ministries and openly ministered to the needs of pregnant girls. Kelly also mentored children and teens through Youth Group, Vacation Bible School, Children's Church, and she started a local Bible Quizzing group for teens.   Teenagers looked up to her as she modeled authenticity and an unwavering faith in Christ.  Kelly loved music and singing for the church worship team.  She also enthusiastically led worship at Children's Church.  A few years ago, Kelly relished the opportunity to share Christ's love with children during a mission trip to Ethiopia for Compassion Ministries.

Kelly's daughter, Cori, described her mom as being spunky, outgoing, bold, and full of faith.  Cori recalled, "She had a 'don't take no crap' personality!"   At age 50, Kelly fulfilled two goals on her bucket list when she went skydiving and took a mission trip to Africa.  Last summer, she also fulfilled her dream of having grandchildren as she held her precious granddaughter, Ellie, for the first time.  Throughout her life, Kelly demonstrated courage and bravery by her hope in God's promises.  Kelly's memory and legacy will be cherished by her family, friends, and all those who loved her.

                          Kelly with her daughter, Cori, on her first trip to California for cancer treatments

KELLY'S CANCER STORY

"My grace is sufficient for you, for my power is made perfect in weakness."  2 Corinthians 12:9

Kelly discovered that she had breast cancer in July of 2010.  After her diagnosis, Kelly and her husband, Jim, carefully researched their options and decided to decline conventional cancer treatments.   Instead, she chose to utilize holistic therapies to treat her cancer.  She made this informed decision despite the overwhelming fear, scorn, and opposition from doctors and other people in her life.  Kelly's husband, children, and her sister, Lori, were 100% supportive of her choice to use holistic cancer treatments.  Kelly spent hours researching the latest information about cancer and related health care strategies, using resources from books and the internet.  She was diligent about eating healthy, using quality supplements, experimenting with recommended holistic therapies, and doing her best to take care of her body.  For two years, she was on a healthy path.  Kelly looked and felt better than she had in years.

Kelly maintained a positive and victorious attitude regarding her cancer journey.  She researched the potential effects of emotional trauma on the progression of cancer and strived to keep her stress level at a minimum; however, in the spring of 2012, multiple unforeseen stresses compounded her life.  That summer, Kelly began to notice a change in her condition.  Although she worked hard to get back on track with her diet and holistic therapies, the cancer was becoming very aggressive and she began to experience weakness, nausea, and physical pain.  Kelly also suffered from severe lymphedema in her left arm and struggled with an immobilized left shoulder.  That fall, Kelly and Jim decided it was time to seek other options, and she researched various integrative cancer clinics that offered alternative therapies.   Kelly then contacted a reputable Christian cancer center called Oasis of Hope, located in Irvine, California.  Oasis of Hope offered a combination of the latest conventional and alternative cancer treatments, showing tremendous results for stage 4 cancer patients.

That November, Kelly, and her daughter, Cori, traveled to California for alternative cancer therapies.  After two weeks of treatments, she experienced relief from her symptoms and was very satisfied with the results; however, several weeks later the pain returned as the cancer had metastasized to her bones.  At that point, the pain had become intense and unbearable.  Kelly's daughter, Cori, remembered watching her mom suffer from attacks of intense pain for hours at a time with no relief. This was one of the hardest emotional experiences Cori had to face.  "My strong mother was so sick, weak, and in so much pain.  It is so hard having to watch someone in that much physical pain for so long, knowing there was nothing I could do to make it go away besides praying that God would heal her.  Where did my lively and outgoing mother go?"

 In the winter of 2013, Kelly returned to Oasis of Hope for seven weeks of low dose chemotherapy and other integrative alternative therapies.  This time, her sister, Lori, accompanied her.  Kelly was in a tremendous amount of pain and weakness, which made the flight out there extremely difficult.  Shortly after her arrival, Kelly went into shock and needed to be admitted into the hospital for a blood transfusion.  Pain and weakness completely consumed her body, yet Kelly never gave up hope, and a few weeks later, her condition improved.  During her stay at at Oasis of Hope, Kelly spent her time focusing on her wellness and ministering to the needs of others.

                                       Kelly bravely received cancer therapies at Oasis of Hope 

THE LOVING ARMS OF A SAVIOR

"For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord."  Romans 8:38-39

  While, Kelly and Lori were in California, they experienced some incredible spiritual encounters.  Kelly had a deep spiritual connection with the staff and other patients at Oasis of Hope. She was amazed that God had filled her heart with an immense compassion for a woman in particular who was suffering from chronic debilitating pain.  Kelly believed it was God's sovereignty that she endured such intense suffering so that she could minister to this woman's needs.  Afterwards, she tearfully shared with her family, "I would NEVER have had that kind of genuine compassion for someone had I not traveled the same PAINFUL road!"  Kelly truly believed that God used her most painful and weakest points to fill her heart with compassion for others so she could share with them the ultimate joy and peace that comes from clinging to Jesus Christ.

When Kelly started getting her strength back, she wanted to attend church in California.  Kelly and Lori began attending a Vineyard church near where they were staying. One Sunday, they both decided to go up for prayer.  Lori recalled that while they were standing to receive prayer, Kelly was looking behind herself and touching her right shoulder. Then, she let go of Lori and moved away from her.  She later told Lori that she felt someone touching her back, but when she looked to see who it was, no one was there.  Then, she felt someone pushing her away from Lori.  They both believed that that an angel was there holding onto Kelly and pushed her away because the angel wanted the sisters to be prayed for separately.

A couple weeks later, Kelly and Lori decided to attend a church that was recommended by one of the nurses at the cancer center.  At a church service, they had a truly unforgettable encounter.  While they were worshiping and singing the song "Forever Reign" Kelly was feeling tired and decided to sit down.  As they were singing, "Oh I'm running to your arms, running to your arms... Nothing compares to your embrace...", Lori saw Jesus coming beside Kelly on her right side.  Lori remembered that Jesus had on a white robe with wide sleeves and wore a white crown that appeared to be made of two different types of material twisted together, like a crown of thorns. Then, Lori starting rubbing Kelly's back thinking Kelly would probably tell her to stop because it wasn't something Lori would normally do.

Lori recalled, "When I saw Him, I was overcome and tears were flowing, but I wasn't making a sound.  I could feel my heart racing, and it was like time stood still while I tried to continue singing the song.  I wondered why He didn't come and sit between us.  Why did He only sit on her right side?  I didn't think about it for very long, though.  Jesus had his arm around her shoulders and was holding on to her left arm, the one with lymphodema.  As the song played, I was thinking about Kelly's arm and Jesus's arm.  The song was about her running to His arms, and He was there to help her with her 'stupid arm' as she liked to call it."

Afterwards, Lori was stunned about the entire incident.  She thought for sure if she shared it with anyone they would think she was either lying or crazy.  She didn't tell Kelly what happened for a few days.  When Lori finally did tell her sister the story, Kelly was awestruck and asked several questions about Jesus and what happened.  They both cried together and then Kelly said, "Why didn't you tell me when it was happening?"  When Lori explained her fear that Kelly wouldn't believe her, Kelly told her "I would have been like, Lou (Kelly's nickname for Lori), Jesus is right next to you right now!!"  Kelly couldn't wait to call her family and share this amazing story.  Kelly strongly believed that Jesus showed himself for Lori's sake to let her know that Jesus was holding on to Kelly and to reassure her that He had her sister. This experience made it easier for Lori to let go when it was time for Kelly to enter into eternity.

Kelly was such a selfless person and used these inspiring experiences to point others to Christ.  She called me a few weeks later to share her miraculous story.  I remember her telling me that Lori was a very practical person and it wasn't like her to come up with stories like that.  Then, she said, "Darcee, when your body is weak and you feel like you are barely hanging on, just close your eyes and picture Jesus holding onto you.  Always remember He has you."  

THE ULTIMATE VICTORY

"My heart and flesh may fail, but God is the strength of my heart and portion forever."  Psalm 73:26

Kelly experienced huge improvements at the end of her stay at Oasis of Hope.  She looked and felt healthier and stronger.  Her hemoglobin was much higher, and she was gaining back some of the unhealthy weight she had lost.  Kelly's pain, inflammation, lymphedema, and immobilized shoulder were greatly improved.  After Kelly returned home from her trip to California, the next two scans showed that the cancer had significantly decreased and was almost completely out of her bones.  Kelly and her family were praising God for these improvements and for the outpouring of love from family and friends.   Shortly after returning from California, friends and family put together a benefit to raise funds for Kelly's medical expenses.  She was very touched by their compassion and support.

That summer, Kelly tried some other alternative therapies using a Soq1 bed that had Far infrared therapy.  She also went on a Gerson diet of juicing and continued to do the coffee enemas recommended by one of the practitioners at Oasis of Hope.  As she eliminated cancer cells, Kelly noticed more improvements, and her next scan showed that the tumors had reduced even more.  Kelly purchased her own bed and was doing the therapy at home. In August, Kelly began to have a change of condition and experienced shortness of breath secondary to fluid build-up in her lungs.  Kelly visited the Emergency Room on a few occasions to remove the fluid.  Unfortunately, the cancer had become more aggressive and scans showed that the cancer had spread to her lungs and metastasized to the rest of her body.  In early October, Kelly and Lori were one day away from returning to California for some new integrative treatments specific to her blood and cancer type; however, she was admitted to Regions hospital in St. Paul.

In the hospital, Kelly fought hard to live until her last breath.  She never gave up and never lost faith in God.  My husband and I visited Regions to pray with Kelly and her family the night before her passing. When we were there, we could feel the intense presence of God in the room and our hearts were filled with compassion for Kelly and her family as they bravely faced the end with hope that God would provide a miracle.  I remembered Kelly once telling me that there was no reason to be afraid of death.  She said that she would fight to live for her family because they needed her; however, she knew that if it was God's will for her life to end, He would provide a way to take care of them.  She did not fear dying because she believed that Christ had conquered death.  Christ was Kelly's ultimate victory.  Even though we have struggled understanding why God chose to take Kelly home to her heavenly dwelling, we have found comfort in knowing she has been completely healed in the presence of God's glory.

                                           Kelly was very devoted to her husband and children

INSPIRING HOPE FOR GENERATIONS TO COME

"Now to him who was able to do far more abundantly than all we ask or think, according to the power at work within us."  Ephesians 3:20

Throughout Kelly's cancer journey, she always sought God's will in her life.  He revealed to her many issues that He wanted her to bring to Him so He could heal and restore her.  She brought all the past pains and struggles before Christ so that by His power He could heal emotions, experiences, relationships, mindsets, and false beliefs.  Shortly before her passing, Kelly had the opportunity to mend some broken relationships as she reconnected with her birth mom and siblings, many whom she had not spoken to in over 40 years.  She believed that Jesus Christ was the only one who had the power and authority to heal and mend relationships.

Kelly never indulged herself in self-pity or took on a "victim" mindset, even when the cancer was becoming aggressive.  She was proactive and strong in her faith.  As the disease intensified Kelly's pain and weakness, God intensified her faith.  Kelly became more intentional about pursuing God through her daily struggles by filling her mind and heart with the truth of His word and with worship music.  Her motto was, "I'm healed in Jesus's name, it is already done... I'm just waiting for the facts!"  Kelly's steadfast faith was a testimony to those who walked the last leg of the journey with her.

At Kelly's funeral, numerous people stood up to express how she impacted their lives.  Kelly shared the gospel with many people and lived out the gospel all the days of her life.  Her life demonstrated the true nature of a woman after God's heart.  She has inspired other generations to find hope and faith in Christ alone.  Nothing was wasted--not her pain, her suffering, or her experiences with holistic health.  All these things were used for God's glory to teach others His love and mercy.  Kelly wanted to help people to be proactive with taking care of their bodies and to trust God no matter what.  Her testimony of faith has led many to the hope of the living God.  Kelly's legacy will continue to live on in the hearts and memories of the lives she touched.

RESOURCES

For more information about Oasis of Hope Cancer Center, you can visit their website:
http://www.oasisofhope.com/?gclid=CPatieOvw74CFXQ1MgodaQwAdA

To read more about Kelly's courageous battle with cancer, you can read her Healing Benefit page:
https://www.youcaring.com/medical-fundraiser/kelly-s-healing-benefit/39293